Mental health and well-being of unpaid caregivers: a cross-sectional survey protocol.

Autor:	Parry M; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada monica.parry@utoronto.ca., Beleno R; Patient Partner (Caregiver), AGE WELL, University Health Network, Toronto, Ontario, Canada., Nissim R; Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, Ontario, Canada.; Department of Psychiatry, University of Toronto, Toronto, Ontario, Canada., Baiden D; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada., Baxter P; School of Nursing, McMaster University, Hamilton, Ontario, Canada., Betini R; Researcher, interRAI, Waterloo, Ontario, Canada., Bjørnnes AK; Department of Nursing and Health Promotion, Faculty of Health Sciences, Oslo Metropolitan University, Oslo, Norway., Burnside H; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada., Gaetano D; Patient Partner (Caregiver), Dementia Canada, Calgary, Alberta, Canada., Hemani S; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada., McCarthy J; Director, Programs and Services, The Ontario Caregiver Organization, Toronto, Ontario, Canada., Nickerson N; Patient Partner (Caregiver), Canadian Women's Heart Health Alliance, Halifax, Nova Scotia, Canada., Norris C; Faculty of Nursing, University of Alberta, Edmonton, Alberta, Canada., Nylén-Eriksen M; Department of Nursing and Health Promotion, Faculty of Health Sciences, Oslo Metropolitan University, Oslo, Norway., Owadally T; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada., Pilote L; General Internal Medicine, McGill University, Montreal, Quebec, Canada.; Centre for Outcomes Research and Evaluation, Research Institute of the McGill University Health Centre, Montreal, Quebec, Canada., Warkentin K; Patient Partner (Caregiver), Gender Outcomes International Group, Vancouver, British Columbia, Canada., Coupal A; Chief Executive Officer, The Ontario Caregiver Organization, Toronto, Ontario, Canada., Hasan S; Executive Director, Council of Agencies Serving South Asians, Toronto, Ontario, Canada., Ho M; Director, Education and Research, Yee Hong Centre for Geriatric Care, Scarborough, Ontario, Canada., Kulbak O; Policy Analyst, Canadian Cancer Society, Toronto, Ontario, Canada., Mohammed S; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada., Mullaly L; Manager, Knowledge Mobilization, Mental Health Commission of Canada, Ottawa, Ontario, Canada., Theriault J; Executive Director, Caregivers Nova Scotia, Halifax, Nova Scotia, Canada., Wayne N; Executive Director, Canadian Black Policy Network, Toronto, Ontario, Canada., Wu W; Patient Partner (Caregiver), North York Toronto Health Partners, Toronto, Ontario, Canada., Yeboah EK; Executive Director, Canadian Black Policy Network, Toronto, Ontario, Canada., O'Hara A; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada., Peter E; Lawrence S. Bloomberg Faculty of Nursing, University of Toronto, Toronto, Ontario, Canada.
Jazyk:	angličtina
Zdroj:	BMJ open [BMJ Open] 2023 Jan 13; Vol. 13 (1), pp. e070374. Date of Electronic Publication: 2023 Jan 13.
DOI:	10.1136/bmjopen-2022-070374
Abstrakt:	Introduction: Unpaid caregiving, care provided by family/friends, is a public health issue of increasing importance. COVID-19 worsened the mental health conditions of unpaid caregivers, increasing substance/drug use and early development of chronic disease. The impact of the intersections of race and ethnicity, sex, age and gender along with unpaid care work and caregivers' health and well-being is unknown. The aim of this study is to describe the inequities of caregiver well-being across the intersections of race and ethnicity, sex, age and gender using a cross-sectional survey design. Methods and Analysis: We are collaborating with unpaid caregivers and community organisations to recruit a non-probability sample of unpaid caregivers over 18 years of age (n=525). Recruitment will focus on a target sample of 305 South Asian, Chinese and Black people living in Canada, who represent 60% of the Canadian racial and ethnic populations. The following surveys will be combined into one survey: Participant Demographic Form, Caregiver Well-Being Index, interRAI Self-report of Carer Needs and the GENESIS (GENdEr and Sex DetermInantS of Cardiovascular Disease: From Bench to Beyond-Premature Acute Coronary Syndrome) PRAXY Questionnaire. Sample characteristics will be summarised using descriptive statistics. The scores from the Caregiver Well-Being Index will be dichotomised into fair/poor and good/excellent. A two-stage analytical strategy will be undertaken using logistic regression to model fair/poor well-being and good/excellent well-being according to the following axes of difference set a priori: sex, race and ethnicity, gender identity, age, gender relations, gender roles and institutionalised gender. The first stage of analysis will model the main effects of each factor and in the second stage of analysis, interaction terms will be added to each model. Ethics and Dissemination: The University of Toronto's Health Sciences Research Ethics Board granted approval on 9 August 2022 (protocol number: 42609). Knowledge will be disseminated in pamphlets/infographics/email listservs/newsletters and journal articles, conference presentation and public forums, social media and through the study website. Trial Registration Number: This is registered in the Open Sciences Framework with a Registration DOI as follows: https://doi.org/10.17605/OSF.IO/PB9TD. Competing Interests: Competing interests: None declared. (© Author(s) (or their employer(s)) 2023. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
Databáze:	MEDLINE
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