The duty of confidentiality during family involvement: ethical challenges and possible solutions in the treatment of persons with psychotic disorders.

Autor: Hansson KM; Centre for Medical Ethics, University of Oslo, Postboks 1130 Blindern, 0318, Oslo, Norway. k.m.hansson@medisin.uio.no., Romøren M; Centre for Medical Ethics, University of Oslo, Postboks 1130 Blindern, 0318, Oslo, Norway., Weimand B; Center for Mental Health and Substance Abuse, Faculty of Health and Social Sciences, University of South-Eastern Norway, Drammen, Norway.; Division of Mental Health Services, Akershus University Hospital, Sykehusveien 25, 1474, Nordbyhagen, Norway., Heiervang KS; Centre for Medical Ethics, University of Oslo, Postboks 1130 Blindern, 0318, Oslo, Norway.; Center for Mental Health and Substance Abuse, Faculty of Health and Social Sciences, University of South-Eastern Norway, Drammen, Norway.; Division of Mental Health Services, Akershus University Hospital, Sykehusveien 25, 1474, Nordbyhagen, Norway., Hestmark L; Centre for Medical Ethics, University of Oslo, Postboks 1130 Blindern, 0318, Oslo, Norway., Landeweer EGM; University Center of Medical Sciences, University of Groningen, Antonius Deusinglaan 1, 9713, AV, Groningen, The Netherlands., Pedersen R; Centre for Medical Ethics, University of Oslo, Postboks 1130 Blindern, 0318, Oslo, Norway.
Jazyk: angličtina
Zdroj: BMC psychiatry [BMC Psychiatry] 2022 Dec 20; Vol. 22 (1), pp. 812. Date of Electronic Publication: 2022 Dec 20.
DOI: 10.1186/s12888-022-04461-6
Abstrakt: Background: Family involvement during severe mental illness is still poorly implemented, contrary to evidence-based recommendations. Confidentiality issues are among the most prominent barriers, with mental health professionals facing complex ethical, legal, and practical challenges. However, research focusing on this barrier is very sparse. Nested within a cluster-randomised trial to implement guidelines on family involvement for persons with psychotic disorders in community mental health centres, the aim of this sub-study was to explore ethical challenges related to the duty of confidentiality as experienced by mental health professionals, and to explore key measures that might contribute to improving the handling of such challenges.
Methods: In total 75 participants participated in 21 semi-structured focus groups, including implementation team members at the initial and late phase of the intervention period and clinicians who were not on the implementation teams, at late phase of implementation. We used purposive sampling and manifest content analysis to explore participants' experiences and change processes.
Results: Ethical challenges related to the duty of confidentiality included 1) Uncertainty in how to apply the legislation, 2) Patient autonomy versus a less strict interpretation of the duty of confidentiality, 3) Patient alliance and beneficence versus a less strict interpretation of the duty of confidentiality, 4) How to deal with uncertainty regarding what relatives know about the patients' illness, and 5) Relatives' interests versus the duty of confidentiality. Measures to facilitate better handling of the duty of confidentiality included 1) Training and practice in family involvement, and 2) Standardisation of family involvement practices.
Conclusion: When health professionals gained competence in and positive experiences with family involvement, this led to vital changes in how they interpreted and practiced the duty of confidentiality in their ethical reasoning and in clinical practice. Especially, the need to provide sufficient information to the patients about family involvement became evident during the study. To improve the handling of confidentiality issues, professionals should receive training in family involvement and confidentiality statutes followed by practice. Furthermore, family involvement should be standardised, and confidentiality guidelines should be implemented in the mental health services.
Trial Registration: ClinicalTrials.gov Identifier NCT03869177. Registered 11.03.19.
(© 2022. The Author(s).)
Databáze: MEDLINE
Externí odkaz: