An iterative and interdisciplinary categorisation process towards FAIRer digital resources for sensitive life-sciences data.

Autor: David R; European Research Infrastructure on Highly Pathogenic Agents (ERINHA), 1050, Brussels, Belgium., Ohmann C; European Clinical Research Infrastructure Network (ECRIN), 75013, Paris, France. christianohmann@outlook.de.; European Clinical Research Infrastructures Network (ECRIN), Kaiserswerther Strasse 70, 40477, Düsseldorf, Germany. christianohmann@outlook.de., Boiten JW; European Advanced Translational Research Infrastructure (EATRIS)/Lygature, 3521 AL, Utrecht, The Netherlands., Abadía MC; Biobanking and Biomolecular Resources Research Infrastructure (BBMRI-ERIC), 8010, Graz, Austria., Bietrix F; European Infrastructure for Translational Medicine (EATRIS), 1081 HZ, Amsterdam, The Netherlands., Canham S; European Clinical Research Infrastructure Network (ECRIN), 75013, Paris, France., Chiusano ML; European Marine Biological Resource Centre (EMBRC), University Federico II of Naples and Stazione Zoologica Anton Dohrn, 80138, Naples, Italy., Dastrù W; Department of Molecular Biotechnology and Health Sciences, Molecular Imaging Center, University of Torino, 10125, Torino, Italy., Laroquette A; European Marine Biological Resource Centre (EMBRC), 75252, Paris, France., Longo D; European Research Infrastructure for Biological and Biomedical Imaging (Euro-Bioimaging), Institute of Biostructures and Bioimaging. National Research Council of Italy (CNR), 10126, Torino, Italy., Mayrhofer MT; Biobanking and Biomolecular Resources Research Infrastructure (BBMRI-ERIC), 8010, Graz, Austria., Panagiotopoulou M; European Clinical Research Infrastructure Network (ECRIN), 75013, Paris, France., Richard AS; European Research Infrastructure on Highly Pathogenic Agents (ERINHA), 1050, Brussels, Belgium., Goryanin S; European Clinical Research Infrastructure Network (ECRIN), 75013, Paris, France., Verde PE; Coordination Centre for Clinical Trials, Heinrich Heine University Düsseldorf, 40225, Düsseldorf, Nordrhein-Westfalen, Germany.
Jazyk: angličtina
Zdroj: Scientific reports [Sci Rep] 2022 Dec 05; Vol. 12 (1), pp. 20989. Date of Electronic Publication: 2022 Dec 05.
DOI: 10.1038/s41598-022-25278-z
Abstrakt: For life science infrastructures, sensitive data generate an additional layer of complexity. Cross-domain categorisation and discovery of digital resources related to sensitive data presents major interoperability challenges. To support this FAIRification process, a toolbox demonstrator aiming at support for discovery of digital objects related to sensitive data (e.g., regulations, guidelines, best practice, tools) has been developed. The toolbox is based upon a categorisation system developed and harmonised across a cluster of 6 life science research infrastructures. Three different versions were built, tested by subsequent pilot studies, finally leading to a system with 7 main categories (sensitive data type, resource type, research field, data type, stage in data sharing life cycle, geographical scope, specific topics). 109 resources attached with the tags in pilot study 3 were used as the initial content for the toolbox demonstrator, a software tool allowing searching of digital objects linked to sensitive data with filtering based upon the categorisation system. Important next steps are a broad evaluation of the usability and user-friendliness of the toolbox, extension to more resources, broader adoption by different life-science communities, and a long-term vision for maintenance and sustainability.
(© 2022. The Author(s).)
Databáze: MEDLINE
Externí odkaz:
Nepřihlášeným uživatelům se plný text nezobrazuje