Communication Preferences of Parents and Caregivers of Children and Youth With Special Healthcare Needs During a Hypothetical Infectious Disease Emergency.

Autor: Hipper TJ; Thomas J. Hipper, MSPH, MA, is Associate Director, Center for Public Health Readiness and Communication, and an Assistant Professor, Department of Environmental and Occupational Health, Dornsife School of Public Health, Drexel University, Philadelphia, PA., Popek L; Leah Popek, MPH, is Project Coordinator, Center for Public Health Readiness and Communication, Department of Environmental and Occupational Health, Dornsife School of Public Health, Drexel University, Philadelphia, PA., Davis RK; Renee K. Davis, MD, MPH, is Program Coordinator, Department of Community Health and Prevention, Dornsife School of Public Health, Drexel University, Philadelphia, PA., Turchi RM; Renee M. Turchi, MD, MPH, is a Clinical Professor, Dornsife School of Public Health, Drexel University, Philadelphia, PA.; Renee M. Turchi is also a Professor and Chair of Pediatrics, Drexel University College of Medicine, Philadelphia, PA., Massey PM; Philip M. Massey PhD, MPH, is Director and an Associate Professor, Center for Public Health and Technology, Department of Health, Human Performance and Recreation, University of Arkansas, Fayetteville, AR., Lege-Matsuura J; Jennifer Lege-Matsuura, MSLIS, is a Medical Librarian, Drexel University Libraries, Drexel University, Philadelphia, PA., Lubell KM; Keri M. Lubell, PhD, is a Behavioral Scientist, Centers for Disease Control and Prevention, Atlanta, GA., Pechta L; Laura Pechta, PhD, is a Senior Health Communication Specialist, Division of Global Health Protection, Center for Global Health, Centers for Disease Control and Prevention, Atlanta, GA., Briseño L; Lisa Briseño, MS, is a Health Communication Specialist, Emergency Risk Communication Branch, Division of Emergency Operations, Center for Preparedness and Response, Centers for Disease Control and Prevention, Atlanta, GA., Rose DA; Dale A. Rose, PhD, MSc, is Deputy Director, Division of Bacterial Diseases, National Center for Immunization and Respiratory Diseases, Centers for Disease Control and Prevention, Atlanta, GA., Chatham-Stephens K; Kevin Chatham-Stephens, MD, MPH, is Children's Preparedness Unit Lead, Centers for Disease Control and Prevention, Atlanta, GA., Leeb RT; Rebecca T. Leeb, PhD, is a Health Scientist/Epidemiologist, National Center on Birth Defects and Developmental Disabilities, Centers for Disease Control and Prevention, Atlanta, GA., Chernak E; Esther Chernak MD, MPH, is Director, Center for Public Health Readiness and Communication, Dornsife School of Public Health, Drexel University, Philadelphia, PA.; Esther Chernak is also a Professor, Department of Medicine, Drexel University College of Medicine, Philadelphia, PA.
Jazyk: angličtina
Zdroj: Health security [Health Secur] 2022 Nov-Dec; Vol. 20 (6), pp. 467-478. Date of Electronic Publication: 2022 Dec 02.
DOI: 10.1089/hs.2022.0033
Abstrakt: Children and youth with special healthcare needs are at risk for severe consequences during infectious disease emergencies. Messages for parents and caregivers from trusted sources, via preferred channels, that contain the information they need, may improve health outcomes for this population. In this mixed methods study, we conducted a survey (N = 297) and 80 semistructured interviews, with 70 caregivers of children and youth and 10 young adults with special healthcare needs, between April 2018 and June 2019 in Pennsylvania. The survey presented 3 scenarios (ie, storm, disease outbreak, radiation event); the interviews included questions about storms and an outbreak. This article addresses only the disease outbreak data from each set. Participants were recruited through convenience samples from an urban tertiary care children's hospital and practices in a statewide medical home network. In this article, we summarize the preferred information sources, channels, and content needs of caregivers of children and youth with special healthcare needs during an infectious disease emergency. Nearly 84% of caregivers reported that they believe their child's doctor is the best source of information. Other preferred sources include medical experts (31%); the US Centers for Disease Control and Prevention (30%); friends, family, and neighbors (21%); and local or state health and emergency management (17%). Pediatric healthcare providers play an important role in providing information to parents and caregivers of children and youth with special healthcare needs during an infectious disease emergency. Public health agencies can establish health communication plans that integrate medical practices and other reliable sources to promote the dissemination of accurate information from trusted messengers.
Databáze: MEDLINE