Illness perspectives in patients with primary aldosteronism.

Autor: Ragnarsson O; Department of Endocrinology, Sahlgrenska University Hospital, Gothenburg, Sweden.; Department of Internal Medicine & Clinical Nutrition, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Muth A; Department of Surgery, Sahlgrenska University Hospital, Gothenburg, Sweden.; Department of Surgery, Institute of Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Johannsson G; Department of Endocrinology, Sahlgrenska University Hospital, Gothenburg, Sweden.; Department of Internal Medicine & Clinical Nutrition, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Gkaniatsa E; Department of Endocrinology, Sahlgrenska University Hospital, Gothenburg, Sweden.; Department of Internal Medicine & Clinical Nutrition, Institute of Medicine, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden., Ung EJ; Institute of Health and Care Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.; Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden., Jakobsson S; Institute of Health and Care Sciences, Sahlgrenska Academy at the University of Gothenburg, Gothenburg, Sweden.; Centre for Person-Centred Care (GPCC), University of Gothenburg, Gothenburg, Sweden.
Jazyk: angličtina
Zdroj: PloS one [PLoS One] 2022 Nov 28; Vol. 17 (11), pp. e0277902. Date of Electronic Publication: 2022 Nov 28 (Print Publication: 2022).
DOI: 10.1371/journal.pone.0277902
Abstrakt: Objective: The burden of symptoms and treatment in patients with primary aldosteronism (PA), as well as the patients' experience of the health care is sparsely studied. The objectives of this study were to describe symptoms considered to be the most troublesome by patients with PA, and to explore health related worries and expectations following treatment.
Methods: This was an explorative qualitative study where 25 patients with PA, diagnosed between 2017 and 2019, were included; 13 patients who had undergone adrenalectomy and 12 who were receiving medical treatment. Data was collected during six group interviews and analyzed using a thematic approach.
Results: Three main themes were identified: 1) Distress of the past, where the most important issues were struggle to receive a correct diagnosis, impaired well-being and the consumption of a large number of tablets, 2) Satisfaction after receiving a correct diagnosis, both in patients with unilateral and bilateral disease, but also dissatisfaction with lack of information about the disease, and 3) Future concerns, where worries about the long-term effects of PA on health in general dominated.
Conclusions: Our findings illustrate several important issues related to PA where improvements in patient care are needed, including actions aiming at shortening the long diagnostic delay, a thorough information to the patients about the disease is of great importance, and that all patients with PA, regardless of treatment, would benefit from a structured long-term follow-up.
Competing Interests: The authors have declared that no competing interests exist.
(Copyright: © 2022 Ragnarsson et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.)
Databáze: MEDLINE
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