Factors related to the readiness of Brazilian chronic pediatric patients to transition to care in adult clinics.

Autor: Carrara FSA; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Reumatologia Pediátrica, São Paulo, SP, Brazil. Electronic address: fercarrara@hotmail.com., Piotto DGP; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Reumatologia Pediátrica, São Paulo, SP, Brazil., Silva II; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Reumatologia Pediátrica, São Paulo, SP, Brazil., Len CA; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Reumatologia Pediátrica, São Paulo, SP, Brazil., Russo GCS; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Reumatologia Pediátrica, São Paulo, SP, Brazil., Chiba SM; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Pneumologia Pediátrica, São Paulo, SP, Brazil., Sdepanian VL; Universidade Federal de São Paulo, Departamento de Pediatria, Divisão de Gastroenterologia Pediátrica, São Paulo, SP, Brazil., Braga JAP; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Hematologia Pediátrica, São Paulo, SP, Brazil., Figueiredo MS; Universidade Federal de São Paulo, Departamento de Oncologia Clínica e Experimental, Divisão de Hematologia de Adultos, São Paulo, SP, Brazil., Andrade MC; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Nefrologia Pediátrica, São Paulo, SP, Brazil., de Almeida Maia ML; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Nefrologia Pediátrica, São Paulo, SP, Brazil., Abreu AL; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Nefrologia Pediátrica, São Paulo, SP, Brazil., Silva CMC; Universidade Federal de São Paulo, Departamento de Medicina, Divisão de Cardiologia Pediátrica, São Paulo, SP, Brazil., Terreri MT; Universidade Federal de São Paulo, Departamento de Pediatria, Unidade de Reumatologia Pediátrica, São Paulo, SP, Brazil.
Jazyk: angličtina
Zdroj: Jornal de pediatria [J Pediatr (Rio J)] 2023 May-Jun; Vol. 99 (3), pp. 254-262. Date of Electronic Publication: 2022 Nov 22.
DOI: 10.1016/j.jped.2022.10.006
Abstrakt: Objective: Advances in medicine have increased the life expectancy of pediatric patients with chronic illnesses, and challenges with the guided transition of adolescents and young adults from pediatric clinics to adult clinics have grown. The aim of this study was to better understand readiness and factors related to this transition process in Brazil.
Method: In this cross-sectional study of 308 patients aged from 16 to 21 years under follow-up in pediatric specialties, the degree of readiness for transition was assessed using the Transition Readiness Assessment Questionnaire (TRAQ) and its domains. Associations with demographic data, clinical data, socio-economic level, medication adherence, family functionality, and parental satisfaction with health care were evaluated.
Results: The median TRAQ score was 3.7 (3.2 - 4.2). Better readiness was associated with female patients, socio-economic class A-B, current active employment, higher level of education, not failing any school year, attending medical appointments alone, functional family, and a good knowledge of disease and medications. A low correlation was observed between TRAQ and age. TRAQ presented good internal consistency (alpha-Cronbach 0.86). In the multiple linear regression, TRAQ score showed a significant association with female gender, advanced age, socio-economic class A-B, better knowledge of disease and medications, and independence to attend appointments alone.
Conclusion: TRAQ instrument can guide healthcare professionals to identify specific areas of approach, in order to support adolescents with chronic disease to set goals for their own personal development and improve their readiness to enter into the adult healthcare system. In this study, some factors were related to better TRAQ scores.
Competing Interests: Conflicts of interest The authors declare no conflicts of interest.
(Copyright © 2022 Sociedade Brasileira de Pediatria. Published by Elsevier Editora Ltda. All rights reserved.)
Databáze: MEDLINE