| Autor: |
Graham M; 1Wellcome Centre for Ethics and Humanities, University of Oxford, Oxford, UK., Farina F; 2Feinberg School of Medicine, Northwestern University, Chicago, USA., Ritchie CW; 3Edinburgh Dementia Prevention, University of Edinburgh, Edinburgh, UK., Lawlor B; 4Trinity College Institute of Neuroscience, School of Psychology, Trinity College Dublin, Dublin, Ireland and Global Brain Health Institute, Trinity College Dublin, Dublin, Ireland., Naci L; 4Trinity College Institute of Neuroscience, School of Psychology, Trinity College Dublin, Dublin, Ireland and Global Brain Health Institute, Trinity College Dublin, Dublin, Ireland. |
| Abstrakt: |
A general obligation to make aggregate research results available to participants has been widely supported in the bioethics literature. However, dementia research presents several challenges to this perspective, particularly because of the fear associated with developing dementia. The authors argue that considerations of respect for persons, beneficence, and justice fail to justify an obligation to make aggregate research results available to participants in dementia research. Nevertheless, there are positive reasons in favor of making aggregate research results available; when the decision is made to do so, it is critical that a clear strategy for communicating results is developed, including what support will be provided to participants receiving aggregate research results. |
