Construct validity and reliability of the Informal Caregiver Burden Assessment Questionnaire (QASCI) in caregivers of patients with COPD.

Autor: Hipólito N; Center for Innovative Care and Health Technology (ciTechCare), Polytechnic of Leiria, Campus 5, Rua de Santo André, nº 66-68, 2410-541, Leiria, Portugal., Martins S; Clínica Albano da Silva Teixeira, R. Dom Afonso Henriques 27 A39, 3720-244, Oliveira de Azeméis, Portugal., Ruivo A; Naturidade Porto de Mós, Unidade de Cuidados Continuados Integrados, R. dos Vales nº 5, 2480-109, Porto de Mós, Portugal., Flora S; Center for Innovative Care and Health Technology (ciTechCare), Polytechnic of Leiria, Campus 5, Rua de Santo André, nº 66-68, 2410-541, Leiria, Portugal., Silva CG; Center for Innovative Care and Health Technology (ciTechCare), Polytechnic of Leiria, Campus 5, Rua de Santo André, nº 66-68, 2410-541, Leiria, Portugal; School of Health Sciences, Polytechnic of Leiria, Campus 2, Morro do Lena, Alto do Vieiro - Apartado 4137, 2411-901, Leiria, Portugal; Coimbra Chemistry Centre, Department of Chemistry, University of Coimbra, 3004-535, Coimbra, Portugal., Marques A; Lab 3R - Respiratory Research and Rehabilitation Laboratory, School of Health Sciences (ESSUA), University of Aveiro, Campus Universitário de Santiago, 3810-193, Aveiro, Portugal; Institute of Biomedicine (iBiMED), University of Aveiro, Campus Universitário de Santiago, 3810-193, Aveiro, Portugal., Brooks D; School of Rehabilitation Science, McMaster University, 1400 Main Street West Institute for Applied Health Sciences (IAHS) Building - Room 403, Hamilton, ON L8S 1C7, Canada; West Park Healthcare Centre, 82 Buttonwood Avenue, Toronto, ON M6M 2J5, Canada; University of Toronto, 27 King's College Cir, Toronto, ON M5S 1A1, Canada., Cruz J; Center for Innovative Care and Health Technology (ciTechCare), Polytechnic of Leiria, Campus 5, Rua de Santo André, nº 66-68, 2410-541, Leiria, Portugal; School of Health Sciences, Polytechnic of Leiria, Campus 2, Morro do Lena, Alto do Vieiro - Apartado 4137, 2411-901, Leiria, Portugal; Lab 3R - Respiratory Research and Rehabilitation Laboratory, School of Health Sciences (ESSUA), University of Aveiro, Campus Universitário de Santiago, 3810-193, Aveiro, Portugal. Electronic address: joana.cruz@ipleiria.pt.
Jazyk: angličtina
Zdroj: Respiratory medicine [Respir Med] 2022 Dec; Vol. 205, pp. 107027. Date of Electronic Publication: 2022 Oct 31.
DOI: 10.1016/j.rmed.2022.107027
Abstrakt: Introduction: COPD often leads to loss of independence in daily activities which may increase the dependency on the informal caregiver, resulting in caregiving burden. Several instruments have been used to assess caregiving burden in COPD; however, their measurement properties have been poorly investigated in this population. This study assessed the construct validity and reliability of the Informal Caregiver Burden Assessment Questionnaire (QASCI) in informal caregivers of patients with COPD.
Methods: Participants completed the QASCI (higher scores indicate higher burden) and the following questionnaires to assess construct validity: Zarit Burden Interview (ZBI), Hospital Anxiety and Depression Scale (HADS) and World Health Organization Quality of Life Instrument - Short Form (WHOQOL-Bref). QASCI was completed again one week later to assess test-retest reliability. Statistical analyses included: Pearson's (r) or Spearman's (ρ) correlations (construct validity); Cronbach's α (internal consistency); Intraclass Correlation Coefficient (ICC 2,1 , test-retest reliability) and Standard Error of Measurement (SEM), Minimal Detectable Change (MDC 95 ) and Bland and Altman 95% Limits of Agreement (LoA).
Results: Fifty caregivers (62.7 ± 9.8 years, 88% female; patients' FEV 1  = 45.2 ± 21.3%predicted) participated. QASCI mean score was 28.5 ± 19.8 (moderate burden). QASCI was positively correlated with ZBI (r = 0.908; p < 0.01), HADS anxiety (r = 0.613; p < 0.01) and depression (ρ = 0.634; <0.01) and negatively correlated with WHOQOL-Bref (-0.476 to -0.739) (all p < 0.01). Cronbach's α was 0.793 for the QASCI total score (subscales: 0.747-0.932). The ICC 2,1 was 0.924, SEM 2.8 and MDC 95 7.8, and the LoA were -18.3 to 11.1.
Conclusions: The QASCI seems to be a promising measure to assess burden levels associated with informal caregiving in COPD.
Competing Interests: Declarations of competing interest None.
(Copyright © 2022. Published by Elsevier Ltd.)
Databáze: MEDLINE
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