Valued Outcomes in the Cancer Experience (VOICE)™: Development and validation of a multidimensional measure of perceived control.

Autor:	Zaleta AK; Cancer Support Community, Research and Training Institute, Philadelphia, PA., Fortune EE; Cancer Support Community, Research and Training Institute, Philadelphia, PA., Miller MF; Cancer Support Community, Research and Training Institute, Philadelphia, PA., Yuen EYN; Deakin University, Centre for Quality and Patient Safety Research, Institute for Health Transformation, Burwood, VIC, Australia.; Monash Health, Centre for Quality and Patient Safety Research, Monash Health Partnership, Clayton, VIC, Australia.; La Trobe University, School of Psychology and Public Health, Bundoora, VIC, Australia.; Austin Health, Olivia Newton-John Cancer, Research and Wellness Centre, Psycho-Oncology Research Unit, Heidelberg, VIC, Australia., McManus S; Cancer Support Community, Research and Training Institute, Philadelphia, PA., Hurley K; Center for Adult Behavioral Health, Department of Psychiatry & Psychology, Neurological Institute, Cleveland Clinic, Cleveland, OH., Golant M; Cancer Support Community, Washington, DC., Goldberger S; Cancer Support Community, Washington, DC., Shockney LD; Johns Hopkins University School of Medicine, Baltimore, MD., Buzaglo JS; ConcertAI, Boston, MA.
Jazyk:	angličtina
Zdroj:	Palliative & supportive care [Palliat Support Care] 2023 Jun; Vol. 21 (3), pp. 465-476.
DOI:	10.1017/S1478951522000724
Abstrakt:	Objective: Enhancing cancer patients' sense of control can positively impact psychological well-being. We developed and assessed the psychometric properties of Valued Outcomes in the Cancer Experience (VOICE) TM , a measure of patients' perceived control over key personal priorities within their cancer experience. Methods: VOICE construction and testing were completed in three phases with separate participant samples: (1) item generation and initial item pool testing ( N = 459), (2) scale refinement ( N = 623), and (3) confirmatory validation ( N = 515). Results: A 21-item measure was developed that captures cancer patients' sense of control in seven key domains: (1) Purpose and Meaning, (2) Functional Capacity, (3) Longevity, (4) Quality Care, (5) Illness Knowledge, (6) Social Support, and (7) Financial Capability. VOICE demonstrated adequate internal consistency (full-scale α = 0.93; factor α = 0.67-0.89) and adequate to strong convergent and discriminatory validity. Significance of Results: VOICE measures cancer patients' perceived control across a diverse range of personal priorities, creating a platform for elevating patient perspectives and identifying pathways to enhance patient well-being. VOICE is positioned to guide understanding of the patient experience and aid the development and evaluation of supportive care interventions to enhance well-being.
Databáze:	MEDLINE
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