Comparative study of clinicians' and family members' perceptions of patients' end-of-life experiences.

Autor:	Suzuki K; Department of Palliative Care, Tokyo Metropolitan Cancer and Infectious Diseases Center Komagome Hospital, Bunkyo-ku, Tokyo, Japan kozue_suzuki@tmhp.jp., Morita T; Division of Palliative and Supportive Care, Seirei Mikatahara General Hospital, Hamamatsu, Japan., Mori M; Division of Palliative and Supportive Care, Seirei Mikatahara General Hospital, Hamamatsu, Japan., Azuma Y; Department of Palliative Care, Tokyo Metropolitan Cancer and Infectious Diseases Center Komagome Hospital, Bunkyo-ku, Tokyo, Japan., Funaki H; Department of Palliative Care, Hiroshima Kyoritsu Hospital, Hiroshima, Japan., Amano K; Department of Palliative Medicine, National Cancer Center Hospital, Chuo-ku, Japan.; Department of Palliative and Supportive Medicine, Graduate School of Medicine, Aichi Medical University, Aichi, Japan., Imai K; Seirei Hospice, Seirei Mikatahara General Hospital, Hamamatsu, Japan., Tanaka K; Department of Palliative Care, Tokyo Metropolitan Cancer and Infectious Diseases Center Komagome Hospital, Bunkyo-ku, Tokyo, Japan., Kizawa Y; Department of Palliative and Supportive Care, Faculty of Medicine, University of Tsukuba, Tsukuba, Japan., Tsuneto S; Department of Human Health Sciences, Graduate School of Medicine, Kyoto University, Kyoto, Japan., Shima Y; Department of Palliative Medicine, Tsukuba Medical Center Hospital, Tsukuba Medical Center Foundation, Tsukuba, Japan., Masukawa K; Department of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan., Miyashita M; Department of Palliative Nursing, Health Sciences, Tohoku University Graduate School of Medicine, Sendai, Japan.
Jazyk:	angličtina
Zdroj:	BMJ supportive & palliative care [BMJ Support Palliat Care] 2022 Oct 11. Date of Electronic Publication: 2022 Oct 11.
DOI:	10.1136/spcare-2022-003883
Abstrakt:	Objective: End-of-life experiences (ELEs), such as deathbed visions (DBVs), have been reported worldwide. However, ELEs have rarely been discussed in clinical practice, possibly because of the different perceptions of ELEs among clinicians and families. Therefore, this study aimed to investigate the differences in perception regarding ELEs, especially DBVs, between clinicians and families. Methods: We conducted a multicentre, prospective and observational study with patients with cancer. After the patients' death, clinicians recorded their perceptions of patients' ELEs during the palliative care unit admission, and bereaved families responded to a questionnaire about ELEs. The primary outcome was the frequency and concordance of DBVs from the perspective of bereaved family members and clinicians. The second outcome was each group's frequency of terminal lucidity and terminal coincidence. Results: The study included 443 patients. DBVs were reported more frequently by family members than clinicians (14.0% vs 2.7%, p<0.001). Among family members, terminal lucidity and terminal coincidence were observed at 7% and 7.9%, respectively, while only one case each was reported by clinicians. Conclusions: Clinicians and family members may perceive ELEs differently. Enabling patients and their families to talk about ELEs would assist in optimising grief care. Competing Interests: Competing interests: None declared. (© Author(s) (or their employer(s)) 2022. No commercial re-use. See rights and permissions. Published by BMJ.)
Databáze:	MEDLINE
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