Parental experiences of children with developmental dysplasia of the hip: a qualitative study.

Autor:	Theunissen W; Department of Orthopaedic Surgery & Trauma, Maxima Medical Centre, Veldhoven, The Netherlands wesley.theunissen@mmc.nl., van der Steen MC; Department of Orthopaedic Surgery & Trauma, Maxima Medical Centre, Veldhoven, The Netherlands.; Department of Orthopaedic Surgery & Trauma, Catharina Hospital Eindhoven, Eindhoven, The Netherlands., van Veen MR; Dutch Hip Patient association 'Vereniging Afwijkende Heupontwikkeling (VAH)', Nijkerk, The Netherlands., van Douveren F; Department of Orthopaedic Surgery & Trauma, Maxima Medical Centre, Veldhoven, The Netherlands., Witlox MA; Department of Orthopaedic Surgery & Trauma, Maxima Medical Centre, Veldhoven, The Netherlands.; Department of Orthopaedic Surgery, Maastricht University Medical Centre+, Maastricht, The Netherlands., Tolk JJ; Department of Orthopaedics and Sports Medicine, Erasmus MC Sophia Children's Hospital, Rotterdam, The Netherlands.
Jazyk:	angličtina
Zdroj:	BMJ open [BMJ Open] 2022 Sep 23; Vol. 12 (9), pp. e062585. Date of Electronic Publication: 2022 Sep 23.
DOI:	10.1136/bmjopen-2022-062585
Abstrakt:	Objective: The aim of this qualitative study was to explore the experiences of Dutch parents of children with developmental dysplasia of the hip (DDH), treated with a Pavlik harness, during the diagnostic and treatment process in the first year of life. Design: A qualitative study by means of semistructured interviews was conducted between September and December 2020. Qualitative content analysis was applied to code, categorise and thematise data. Setting: A large, tertiary referral centre for paediatric orthopaedics in the Netherlands. Participants: A purposive sample of parents of children aged younger than 1 year, who were treated for DDH with a Pavlik harness, were interviewed until data saturation was achieved. A total of 20 interviews with 22 parents were conducted. Results: Five main themes emerged: (1) positive experiences with professionals and peers, (2) insufficient information, (3) treatment concerns, (4) difficulties parenting and (5) emotional burden. Most prominent features that resonated across the interviews which led to insecurity by parents were: insufficient pre-hospital information, unfiltered online information and the lack of overview of the patient journey. Conclusion: This study offers novel insights into parental experiences in DDH care. Parents were generally satisfied with DDH care provided by the hospital. The biggest challenges were to cope with (1) insufficient and unfiltered information, (2) the lack of patient journey overview and (3) practical problems and emotional doubts, which led to concerns during treatment. Future research and interventions should focus on optimising information provision and guidance with practical and emotional support for parents of children with DDH. Competing Interests: Competing interests: None declared. (© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
Databáze:	MEDLINE
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