Assessment of patient symptom burden and information needs helps tailoring palliative care consultations: An observational study.

Autor:	Verhoef MJ; Center of Expertise in Palliative Care, Leiden University Medical Center, Leiden, Netherlands., Sweep B; Center of Expertise in Palliative Care, Leiden University Medical Center, Leiden, Netherlands., de Nijs EJM; Center of Expertise in Palliative Care, Leiden University Medical Center, Leiden, Netherlands., Valkenburg AC; Center of Expertise in Palliative Care, Leiden University Medical Center, Leiden, Netherlands., Horeweg N; Department of Radiation Oncology, Leiden University Medical Center, Leiden, Netherlands., Pieterse AH; Department of Biomedical Data Sciences, Leiden University Medical Center, Leiden, Netherlands., van der Steen JT; Department of Public Health and Primary Care, Leiden University Medical Center, Leiden, Netherlands.; Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, Netherlands., van der Linden YM; Center of Expertise in Palliative Care, Leiden University Medical Center, Leiden, Netherlands.; Department of Radiation Oncology, Leiden University Medical Center, Leiden, Netherlands.
Jazyk:	angličtina
Zdroj:	European journal of cancer care [Eur J Cancer Care (Engl)] 2022 Nov; Vol. 31 (6), pp. e13708. Date of Electronic Publication: 2022 Sep 24.
DOI:	10.1111/ecc.13708
Abstrakt:	Objective: The objective of this study is to study (1) the relationship between patient-reported symptom burden and information needs in hospital-based palliative care and (2) differences in patient-reported needs during the disease trajectory. Methods: Observational study: patient-reported symptom burden and information needs were collected via a conversation guide comprising assessment scales for 12 symptoms (0-10), the question which symptom has priority to be solved and a question prompt list on 75 palliative care-related items (35 topics, 40 questions). Non-parametric tests assessed associations. Results: Conversation guides were used by 266 patients. Median age was 65 years (IQ-range, 57-72), 49% were male and 96% had cancer. Patients reported highest burden for Fatigue (median = 7) and Loss of appetite (median = 6) and prioritised Pain (26%), Fatigue (9%) and Shortness of breath (9%). Patients wanted information about 1-38 (median = 14) items, mostly Fatigue (68%), Possibilities to manage future symptoms (68%) and Possible future symptoms (67%). Patients also wanted information about symptoms for which they reported low burden. Patients in the symptom-directed phase needed more information about hospice care. Conclusion: Symptom burden and information needs are related. Patients often also want information about non-prioritised symptoms and other palliative care domains. Tailored information-provision includes inviting patients to also discuss topics they did not consider themselves. (© 2022 The Authors. European Journal of Cancer Care published by John Wiley & Sons Ltd.)
Databáze:	MEDLINE
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