Parental Views of Social Worker and Chaplain Involvement in Care and Decision Making for Critically Ill Children with Cancer.

Autor:	Michelson KN; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.; Center for Bioethics and Medical Humanities, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.; Division of Pediatric Critical Care Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA., Arenson M; Division of Pediatric Critical Care Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.; Department of Psychology, University of Maryland, College Park, MD 20742, USA., Charleston E; Division of Pediatric Critical Care Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA., Clayman ML; Department of General Internal Medicine and Geriatrics, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.; Center for Healthcare Organization and Implementation Research (CHOIR), Veterans Health Administration, Bedford, MA 01730, USA., Brazg T; Center for Health Sciences Interprofessional Education, Research and Practice, University of Washington, Seattle, WA 98195, USA.; Department of Bioethics and Humanities, University of Washington School of Medicine, Seattle, WA 98195, USA., Rychlik K; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.; Stanley Manne Children's Research Institute, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA., Rosenberg AR; Department of Pediatrics, Division of Hematology/Oncology, University of Washington School of Medicine, Seattle, WA 98195, USA.; Palliative Care and Resilience Lab, Seattle Children's Research Institute, Seattle, WA 98145, USA.; Cambia Palliative Care Center of Excellence, UW Medicine, Seattle, WA 98104, USA., Frader J; Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL 60611, USA.; Division of Pediatric Palliative Care, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL 60611, USA.
Jazyk:	angličtina
Zdroj:	Children (Basel, Switzerland) [Children (Basel)] 2022 Aug 26; Vol. 9 (9). Date of Electronic Publication: 2022 Aug 26.
DOI:	10.3390/children9091287
Abstrakt:	Background: Social workers (SWs) and chaplains are trained to support families facing challenges associated with critical illness and potential end-of-life issues. Little is known about how parents view SW/chaplain involvement in care for critically ill children with cancer. Methods: We studied parent perceptions of SW/chaplain involvement in care for pediatric intensive care unit (PICU) patients with cancer or who had a hematopoietic cell transplant. English- and Spanish-speaking parents completed surveys within 7 days of PICU admission and at discharge. Some parents participated in an optional interview. Results: Twenty-four parents of 18 patients completed both surveys, and six parents were interviewed. Of the survey respondents, 66.7% and 75% interacted with SWs or chaplains, respectively. Most parents described SW/chaplain interactions as helpful (81.3% and 72.2%, respectively), but few reported their help with decision making (18.8% and 12.4%, respectively). Parents described SW/chaplain roles related to emotional, spiritual, instrumental, and holistic support. Few parents expressed awareness about SW/chaplain interactions with other healthcare team members. Conclusions: Future work is needed to determine SWs'/chaplains' contributions to and impact on parental decision making, improve parent awareness about SW/chaplain roles and engagement with the healthcare team, and understand why some PICU parents do not interact with SWs/chaplains.
Databáze:	MEDLINE
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