Empowering families to take on a palliative caregiver role for patients with cancer in India: Persistent challenges and promising strategies.

Autor: Fereydooni S; Center for Innovation to Implementation (Ci2i), VA Palo Alto Health Care System, Palo Alto, California, United States of America.; Yale School of Medicine, New Haven, Connecticut, United States of America., Lorenz KA; Center for Innovation to Implementation (Ci2i), VA Palo Alto Health Care System, Palo Alto, California, United States of America.; Stanford University School of Medicine, Palo Alto, California, United States of America., Ganesh A; All India Institute of Medical Science (AIIMS), New Delhi, India., Satija A; All India Institute of Medical Science (AIIMS), New Delhi, India., Spruijt O; Peter MacCallum Cancer Center, Melbourne, Victoria, Australia., Bhatnagar S; All India Institute of Medical Science (AIIMS), New Delhi, India., Gamboa RC; Center for Innovation to Implementation (Ci2i), VA Palo Alto Health Care System, Palo Alto, California, United States of America., Singh N; Center for Innovation to Implementation (Ci2i), VA Palo Alto Health Care System, Palo Alto, California, United States of America., Giannitrapani KF; Center for Innovation to Implementation (Ci2i), VA Palo Alto Health Care System, Palo Alto, California, United States of America.; Stanford University School of Medicine, Palo Alto, California, United States of America.
Jazyk: angličtina
Zdroj: PloS one [PLoS One] 2022 Sep 16; Vol. 17 (9), pp. e0274770. Date of Electronic Publication: 2022 Sep 16 (Print Publication: 2022).
DOI: 10.1371/journal.pone.0274770
Abstrakt: Background: The population of patients with cancer requiring palliative care (PC) is on the rise in India. Family caregivers will be essential members of the care team in the provision of PC.
Objective: We aimed to characterize provider perspectives of the challenges that Indian families face in taking on a palliative caregiving role.
Method: Data for this analysis came from an evaluation of the PC-PAICE project, a series of quality improvement interventions for PC in India. We conducted 44 in-depth semi-structured interviews with organizational leaders and clinical team members at seven geographically and structurally diverse settings. Through thematic content analysis, themes relating to the caregivers' role were identified using a combination of deductive and inductive approaches.
Result: Contextual challenges to taking up the PC caregiving role included family members' limited knowledge about PC and cancer, the necessity of training for caregiving responsibilities, and cultural preferences for pursuing curative treatments over palliative ones. Some logistical challenges include financial, time, and mental health limitations that family caregivers may encounter when navigating the expectations of taking on the caregiving role. Strategies to facilitate family buy-in for PC provision include adopting a family care model, connecting them to services provided by Non-Governmental Organizations, leveraging volunteers and social workers to foster PC awareness and training, and responding specifically to family's requests.
Conclusion: Understanding and addressing the various challenges that families face in adopting the caregiver role are essential steps in the provision and expansion of PC in India. Locally initiated quality improvement projects can be a way to address these challenges based on the context.
Competing Interests: The authors have declared that no competing interests exist.
Databáze: MEDLINE
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