Caregiver-Child Agreement in Health-Related Quality of Life of Autistic Children and Adolescents.

Autor: Lopez-Espejo MA; Unit of Neurology, Division of Pediatrics, School of Medicine, Pontificia Universidad Católica de Chile, Diagonal Paraguay 362, 8330077, Santiago, Chile. mlopeze@med.puc.cl.; Neurodevelopmental Unit, UC CHRISTUS Clinical Hospital, Santiago, Chile. mlopeze@med.puc.cl., Nuñez AC; Unit of Neurology, Division of Pediatrics, School of Medicine, Pontificia Universidad Católica de Chile, Diagonal Paraguay 362, 8330077, Santiago, Chile.; Neurodevelopmental Unit, UC CHRISTUS Clinical Hospital, Santiago, Chile., Ruz M; Neurodevelopmental Unit, UC CHRISTUS Clinical Hospital, Santiago, Chile., Saez V; Neurodevelopmental Unit, UC CHRISTUS Clinical Hospital, Santiago, Chile., Moscoso OC; Neurodevelopmental Unit, UC CHRISTUS Clinical Hospital, Santiago, Chile., Escobar RG; Unit of Neurology, Division of Pediatrics, School of Medicine, Pontificia Universidad Católica de Chile, Diagonal Paraguay 362, 8330077, Santiago, Chile.; Neurodevelopmental Unit, UC CHRISTUS Clinical Hospital, Santiago, Chile.
Jazyk: angličtina
Zdroj: Journal of autism and developmental disorders [J Autism Dev Disord] 2023 Mar; Vol. 53 (3), pp. 977-986. Date of Electronic Publication: 2022 Aug 03.
DOI: 10.1007/s10803-022-05689-7
Abstrakt: This study examined the agreement of perceived health-related quality of life (HRQOL) between caregivers and autistic children and adolescents (n = 133, 5-12 years) using the Pediatric Quality of Life Inventory Generic Core Scales, Fourth Edition (PedsQL 4.0). Results reveal good to excellent agreement over this age range across the total, physical, and psychosocial health scales. However, the emotional, social, and school functioning scores demonstrated lower agreement in dyads with children aged 5-7 than in dyads with children aged 8-12 years. Despite these differences in agreement, overall, the PedsQL 4.0 caregiver-module is a reliable instrument for measuring HRQOL in autistic individuals aged 5-12 years.
(© 2022. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.)
Databáze: MEDLINE
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