[Locally advanced or metastatic bladder cancer: Identification of barriers and levers of patients' pathway in France].

Autor:	Houédé N; Service d'oncologie médicale, CHU Carémeau, université de Montpellier, institut de cancérologie du Gard (ICG), rue du Professeur Henri-Pujol, 30029 Nîmes cedex 9, France. Electronic address: nadine.houede@chu-nimes.fr., Flahault C; Université Paris Cité, laboratoire de psychopathologie et processus de santé, UR4057, Boulogne-Billancourt, France; Service de Psychiatrie de l'adulte et du sujet âgé, AP-HP, Hôpital Corentin Celton, 75004 Paris, France., Gross-Goupil M; Hôpital Saint-André, CHU de Bordeaux, service d'oncologie médicale, 1, rue Jean Burguet, 33000 Bordeaux, France., Le Clanche S; Public Health Expertise, 10, boulevard de Sébastopol, 75004 Paris, France., Le Goff Y; Public Health Expertise, 10, boulevard de Sébastopol, 75004 Paris, France., Merlier F; Cancer Vessie France/Les Zuros, Mazinghem, France., Pignot G; Institut Paoli-Calmettes, service de chirurgie oncologique 2, 232, boulevard de Sainte-Marguerite, 13009 Marseille, France., Pourroy B; CHU Timone, unité Oncopharma, 264, rue Saint-Pierre, 13005 Marseille, France., Thibault C; Hôpital européen Georges-Pompidou, service d'oncologie médicale, 20, rue Leblanc, 75908 Paris cedex 15, France., Xylinas E; Hôpital Bichat-Claude-Bernard, université de Paris, service d'urologie, 46, rue Henri Huchard, 75018 Paris, France., Solbes MN; Merck Sante S.A.S, filiale de Merck KGaA, Lyon, France., Dénéchère G; Pfizer Oncology, Paris, France., Roupret M; Sorbonne université, GRC 5 Predictive Onco-Uro, AP-HP, urologie, hôpital Pitié-Salpêtrière, 75013 Paris, France.
Jazyk:	francouzština
Zdroj:	Bulletin du cancer [Bull Cancer] 2022 Sep; Vol. 109 (9), pp. 925-937. Date of Electronic Publication: 2022 Jun 17.
DOI:	10.1016/j.bulcan.2022.04.010
Abstrakt:	Introduction: Bladder cancer is currently ranked as the 8th most common cancer in France. However, the patient care pathway for this cancer is still not well known. Methods: A telephone survey was conducted with fifteen healthcare professionals, ten patients, and five family caregivers between November 2020 and March 2021. The objectives of this survey were to identify the major steps in the care pathway according to the medical, emotional and societal dimensions, for patients with locally advanced or metastatic bladder cancer, the associated barriers, and the initiatives to be implemented to improve it. Results: Several barriers were identified at different stages of the overall care pathway, including lack of knowledge of risk factors and warning signs of the disease by the general population and some healthcare professionals, difficulties linked to the announcement consultation, lack of psychological support for patients and their caregivers, and lack of information given about the disease and supportive care. Discussion: These results allowed us to identify three major initiatives which could improve the overall care pathway and the quality of life of patients and their caregivers: 1/implementation of a public awareness campaign on bladder cancer; 2/creation of booklets for patients and their caregivers to provide them with a source of reliable information; and 3/the creation of communication tools between healthcare professionals and patients to facilitate exchanges during consultations. (Copyright © 2022 Société Française du Cancer. Published by Elsevier Masson SAS. All rights reserved.)
Databáze:	MEDLINE
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