A pulmonary rehabilitation shared decision-making intervention for patients living with COPD: PReSent: protocol for a feasibility study.

Autor:	Barradell AC; Dept of Respiratory Sciences, University of Leicester, Leicester, UK.; Centre for Exercise and Rehabilitation Science, Leicester Biomedical Research Centre-Respiratory, Glenfield Hospital, Leicester, UK.; National Institute for Health Research Applied Research Collaboration (East Midlands), College of Medicine, Biological Sciences and Psychology, Leicester General Hospital, Leicester, UK., Singh SJ; Dept of Respiratory Sciences, University of Leicester, Leicester, UK.; Centre for Exercise and Rehabilitation Science, Leicester Biomedical Research Centre-Respiratory, Glenfield Hospital, Leicester, UK., Houchen-Wolloff L; Dept of Respiratory Sciences, University of Leicester, Leicester, UK.; Centre for Exercise and Rehabilitation Science, Leicester Biomedical Research Centre-Respiratory, Glenfield Hospital, Leicester, UK., Robertson N; Dept of Neuroscience, Psychology and Behaviour, University of Leicester, Leicester, UK., Bekker HL; Leeds Unit of Complex Intervention Development, School of Medicine, University of Leeds, Leeds, UK.; Research Centre for Patient Involvement, Central Denmark Region and Aarhus University, Aarhus, Denmark.
Jazyk:	angličtina
Zdroj:	ERJ open research [ERJ Open Res] 2022 Jun 06; Vol. 8 (2). Date of Electronic Publication: 2022 Jun 06 (Print Publication: 2022).
DOI:	10.1183/23120541.00645-2021
Abstrakt:	Background: Despite the variety of pulmonary rehabilitation programmes for patients living with COPD, uptake remains low. To improve this, it is recommended that health professionals engage patients in informed decisions about pulmonary rehabilitation. Shared decision-making (SDM) facilitates informed and value-based decision-making between patients and health professionals. This protocol describes the development and evaluation of a complex SDM intervention for patients living with COPD, who are referred for pulmonary rehabilitation, and their pulmonary rehabilitation health professional. Methods and Analysis: We are developing a complex SDM intervention involving a patient decision aid (PtDA) and a decision coaching workshop. Prior to patient recruitment, pulmonary rehabilitation health professionals will attend the workshop. Upon referral to pulmonary rehabilitation, patients will receive the PtDA to support their decision-making prior to and during their pulmonary rehabilitation assessment with a health professional. The intervention will be evaluated in a one-arm exploratory study to investigate its feasibility and acceptability for patients and health professionals, with an integrated fidelity assessment. The primary outcome is recruitment feasibility, data collection feasibility and intervention fidelity. Secondary outcomes include routine pulmonary rehabilitation data, decisional conflict, patient activation, intervention attendance/attrition and patient and pulmonary rehabilitation health professional experience of the intervention. Quantitative outcomes will be evaluated using the most appropriate statistical test, dependent on the sample distribution. Qualitative outcomes will be evaluated using reflexive thematic analysis. Fidelity will be assessed using the Observer OPTION 5 scale. Conclusion: This intervention will provide structure for an informed and values-based decision-making consultation between a patient with COPD and a pulmonary rehabilitation health professional with the potential for optimising pulmonary rehabilitation decision-making. Competing Interests: Conflict of interests: A.C. Barradell reports receiving support for the present manuscript from NIHR ARC East Midlands, and Centre for Exercise and Rehabilitation Science. The remaining authors have nothing to disclose. (Copyright ©The authors 2022.)
Databáze:	MEDLINE
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