Experiences of helplessness and fear among caregivers diagnosed with severe mental illness and co-caregivers: The Danish High Risk and Resilience Study - VIA 7.

Autor: Rohd SB; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark., Hjorthøj C; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark.; University of Copenhagen, Department of Public Health, Section of Epidemiology, 1014Copenhagen K, Denmark., Ohland J; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark., Gregersen M; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark., Hemager N; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark.; Child and Adolescent Mental Health Center, University of Copenhagen, Capital Region of Denmark, Copenhagen, Denmark., Søndergaard A; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark., Christiani CA; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark.; University of Copenhagen, Department of Public Health, Section of Epidemiology, 1014Copenhagen K, Denmark., Spang KS; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; University of Copenhagen, Department of Public Health, Section of Epidemiology, 1014Copenhagen K, Denmark., Ellersgaard D; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark., Burton BK; Child and Adolescent Mental Health Center, University of Copenhagen, Capital Region of Denmark, Copenhagen, Denmark.; Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, DK-2200Copenhagen, Denmark., Melau M; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; Child and Adolescent Mental Health Center, University of Copenhagen, Capital Region of Denmark, Copenhagen, Denmark., Greve A; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark.; Psychosis Research Unit, Aarhus University Hospital, Psychiatry, DK-8200Aarhus, Denmark., Gantriis DL; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark.; Psychosis Research Unit, Aarhus University Hospital, Psychiatry, DK-8200Aarhus, Denmark., Jepsen JRM; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark.; Child and Adolescent Mental Health Center, University of Copenhagen, Capital Region of Denmark, Copenhagen, Denmark.; Center for Clinical Intervention and Neuropsychiatric Schizophrenia Research (CINS) and Center for Neuropsychiatric Schizophrenia Research (CNSR), Mental Health Centre Glostrup, University of Copenhagen, Glostrup, Denmark., Plessen KJ; Child and Adolescent Mental Health Center, University of Copenhagen, Capital Region of Denmark, Copenhagen, Denmark.; Service of Child and Adolescent Psychiatry, Department of Psychiatry, University Medical Center, University of Lausanne, Lausanne, Switzerland., Mors O; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark.; Psychosis Research Unit, Aarhus University Hospital, Psychiatry, DK-8200Aarhus, Denmark., Nordentoft M; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark.; Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, DK-2200Copenhagen, Denmark., Harder S; Department of Psychology, University of Copenhagen, 1353, Copenhagen, Denmark., Thorup AAE; Copenhagen Research Center for Mental Health - CORE, Mental Health Center Copenhagen, Mental Health Services, DK-2900Copenhagen, Capital Region of Denmark, Denmark.; The Lundbeck Foundation Initiative for Integrative Psychiatric Research (iPSYCH), DK-8210Aarhus, Denmark.; Child and Adolescent Mental Health Center, University of Copenhagen, Capital Region of Denmark, Copenhagen, Denmark.; Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, DK-2200Copenhagen, Denmark.
Jazyk: angličtina
Zdroj: Development and psychopathology [Dev Psychopathol] 2023 Aug; Vol. 35 (3), pp. 1540-1551. Date of Electronic Publication: 2022 Jun 06.
DOI: 10.1017/S0954579422000281
Abstrakt: This study investigates indicators of disorganized caregiving among caregivers of children who have a familial predisposition of schizophrenia spectrum psychosis (SZ) or bipolar disorder (BP), and whether indicators of disorganized caregiving are associated with the caregivers' and children's level of functioning as well as the children's internalizing and externalizing behavior problems. Indicators of disorganized caregiving were assessed with the Caregiving Helplessness Questionnaire (CHQ). Level of functioning was evaluated using the Children's Global Assessment Scale and the Personal and Social Performance Scale, while dimensional psychopathology were measured with the Child Behavior Checklist. 185 caregivers belonging to a SZ combined group (i.e., SZ-I + SZ co-caregiver), 110 caregivers to a BP combined group (i.e., BP-I + BP co-caregiver), and 184 caregivers to a population-based control group provided data on CHQ. Having a history of SZ or BP or being a co-caregiver to a parent with SZ or BP was associated with higher levels of experiences of helplessness and fear. Higher scores on helplessness were associated with lower level of functioning among caregivers and children and with children having externalizing/internalizing behavior problems. These results emphasize the need for interventions addressing indicators of disorganized caregiving in families with SZ or BP.
Databáze: MEDLINE