Lived Experiences of Siblings of Individuals with Autism Spectrum Disorder in India: An Interpretative Phenomenological Analysis.

Autor: Viswanathan P; Dept. of Clinical Psychology, National Institute of Mental Health and Neurosciences, Bengaluru, Karnataka, India., Kishore MT; Dept. of Clinical Psychology, National Institute of Mental Health and Neurosciences, Bengaluru, Karnataka, India., Seshadri SP; Dept. of Child and Adolescent Psychiatry, National Institute of Mental Health and Neurosciences, Bengaluru, Karnataka, India.
Jazyk: angličtina
Zdroj: Indian journal of psychological medicine [Indian J Psychol Med] 2022 Jan; Vol. 44 (1), pp. 45-52. Date of Electronic Publication: 2021 Jul 29.
DOI: 10.1177/02537176211029111
Abstrakt: Background: Autism spectrum disorder (ASD) can impact the individual and their families. The impact on siblings is unique because they evolve from being another child in the family to a future adult who can be a potential resource to the family in supporting a member with ASD. Since the quality of care and support can be affected by the lived experiences of the carer and there are not many studies on siblings, this study examined the lived experiences of siblings of individuals with ASD.
Methods: Fourteen siblings of individuals with ASD, aged 15-36 years, were recruited from a tertiary hospital, schools, and private institutes. A semistructured interview schedule was used to explore the lived experiences. Interpretative phenomenological analysis (IPA) was used to identify the themes.
Results: The themes based on IPA indicated that the siblings have very basic concerns like understanding the condition and complex issues such as coping, preparing for current and future roles, personal needs and expectations, need for a support system, and positive aspects of the sibling relationship. Nonetheless, the siblings minimized reporting their difficulties and focused more on the needs of the sibling with ASD.
Conclusion: Siblings have diverse lived experiences, with a small element of positive experiences. Appropriate supports are needed to address the complexities of the lived experiences.
Competing Interests: Declaration of Conflicting Interests: The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
(© 2022 Indian Psychiatric Society - South Zonal Branch.)
Databáze: MEDLINE
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