Delivering multidisciplinary neuromuscular care for children via telehealth.

Autor: Carroll K; Department of Neurology, The Royal Children's Hospital, Parkville, Victoria, Australia.; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia.; Department of Physiotherapy, Faculty of Medicine, Nursing and Health Sciences, Monash University, Frankston, Victoria, Australia., Adams J; Department of Neurology, The Royal Children's Hospital, Parkville, Victoria, Australia.; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia., de Valle K; Department of Neurology, The Royal Children's Hospital, Parkville, Victoria, Australia.; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia.; Department of Physiotherapy, University of Melbourne, Victoria, Australia., Forbes R; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia.; Victorian Clinical Genetics Service, Murdoch Children's Research Institute, Parkville, Victoria, Australia., Kennedy RA; Department of Neurology, The Royal Children's Hospital, Parkville, Victoria, Australia.; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia., Kornberg AJ; Department of Neurology, The Royal Children's Hospital, Parkville, Victoria, Australia.; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia.; Department of Paediatrics, The University of Melbourne, Victoria, Australia., Vandeleur M; Department of Respiratory and Sleep Medicine, The Royal Children's Hospital, Parkville, Victoria, Australia.; Infection and Immunity- Respiratory Diseases, Murdoch Children's Research Institute, Parkville, Victoria, Australia., Villano D; Department of Neurology, The Royal Children's Hospital, Parkville, Victoria, Australia.; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia., Woodcock IR; Department of Neurology, The Royal Children's Hospital, Parkville, Victoria, Australia.; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia.; Department of Paediatrics, The University of Melbourne, Victoria, Australia., Yiu EM; Department of Neurology, The Royal Children's Hospital, Parkville, Victoria, Australia.; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia.; Department of Paediatrics, The University of Melbourne, Victoria, Australia., Ryan MM; Department of Neurology, The Royal Children's Hospital, Parkville, Victoria, Australia.; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia.; Department of Paediatrics, The University of Melbourne, Victoria, Australia., Davidson Z; Department of Neurology, The Royal Children's Hospital, Parkville, Victoria, Australia.; Neuroscience Group, Murdoch Children's Research Institute, Parkville, Victoria, Australia.; Department of Nutrition, Dietetics and Food, School of Clinical Sciences at Monash Health, Faculty of Medicine, Nursing and Health Sciences, Monash University, Victoria, Australia.
Jazyk: angličtina
Zdroj: Muscle & nerve [Muscle Nerve] 2022 Jul; Vol. 66 (1), pp. 31-38. Date of Electronic Publication: 2022 Apr 29.
DOI: 10.1002/mus.27557
Abstrakt: Introduction/aims: In response to coronavirus disease 2019 (COVID-19) pandemic restrictions int 2020, our face-to-face (F2F) multidisciplinary neuromuscular clinic (NMC) transitioned to widespread use of telehealth (TH). This study aimed to (1) understand parent/guardian, child, and clinician perceptions of TH; (2) examine TH-related changes in clinical activity; and (3) use these findings to inform a future model of care for the NMC.
Methods: A clinical audit was undertaken to examine clinical activity throughout 2018-2020. Online surveys were distributed to clinicians and parents of children attending the NMC via TH in 2020. A working group of clinicians created a checklist to guide a future hybrid model of TH and F2F care.
Results: Total clinical activity in 2020 was maintained from previous years; 62.8% of all appointments occurred via TH, and 82.3% of patients attended NMC by TH at least once. Ninety-nine parents (30.6% response rate), 52 children, and 17 clinicians (77% response rate) responded to the survey. All groups reported better interaction when F2F compared to TH. Eighty percent of parents identified advantages of TH and reported lower levels of stress. A lack of "hands-on" physical assessment was identified by parents and clinicians as a TH limitation. Most families (68.1% of parents; 58.8% of children) and all clinicians indicated a preference for a mix of TH and F2F NMC appointments in the future.
Discussion: This study has informed a checklist to guide future TH use in a new hybrid model of care. Further investigation is required to assess health impacts of TH use in pediatric neuromuscular care.
(© 2022 The Authors. Muscle & Nerve published by Wiley Periodicals LLC.)
Databáze: MEDLINE
Externí odkaz: