Parents' Perception of Barriers to the Comprehensive Management of Children With Cleft Lip and Palate in Bogota, Colombia.
| Autor: | González-Carrera MC; Universidad El Bosque, School of Dentistry, UMIMC Group (Comprehensive Management of Craniofacial Abnormalities Unit), Bogota, Colombia.; Fundación FISULAB, Bogotá, Colombia., Ruiz JA; Universidad El Bosque, School of Dentistry, INVBOCA Group (Public and Community Oral Health Research), Bogota, Colombia., Mora-Díaz II; Universidad El Bosque, School of Dentistry, UMIMC Group (Comprehensive Management of Craniofacial Abnormalities Unit), Bogota, Colombia.; Universidad El Bosque, School of Dentistry, INVBOCA Group (Public and Community Oral Health Research), Bogota, Colombia.; Universidad El Bosque, School of Dentistry, Research, Bogota, Colombia., Pereira de Souza D; Universidad El Bosque, School of Dentistry, Pediatric Dentistry Postgraduate Studies, Bogotá, Colombia., Restrepo-Pérez LF; Universidad El Bosque, School of Dentistry, INVBOCA Group (Public and Community Oral Health Research), Bogota, Colombia., Bendahan Z; Universidad El Bosque, School of Dentistry, UMIMC Group (Comprehensive Management of Craniofacial Abnormalities Unit), Bogota, Colombia.; Fundación FISULAB, Bogotá, Colombia., Bautista GR; Universidad El Bosque, School of Dentistry, Research, Bogota, Colombia., Díaz-Báez D; Universidad El Bosque, School of Dentistry, Research, Bogota, Colombia.; Universidad El Bosque, Unit of Basic Oral Investigation - UIBO, School of Dentistry, Bogotá, Colombia. |
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| Jazyk: | angličtina |
| Zdroj: | The Cleft palate-craniofacial journal : official publication of the American Cleft Palate-Craniofacial Association [Cleft Palate Craniofac J] 2023 Jul; Vol. 60 (7), pp. 810-822. Date of Electronic Publication: 2022 Mar 31. |
| DOI: | 10.1177/10556656221082759 |
| Abstrakt: | Object: To identify the perception of barriers to the comprehensive management of cleft lip and palate (CLP) by parents/caregivers of Colombian children with this condition. Setting and Sample Population: Fifty parents/caregivers of children with CLP under 12 years attending a center specialized in the management of craniofacial congenital conditions in Bogota, Colombia. Materials and Methods: This study consisted of 2 phases: a quantitative phase (descriptive cross-sectional) and a qualitative phase (focus group [FG]). Chi-square and Fisher exact tests were used to analyze the association variables. The barriers and alternative ways to overcome barriers were analyzed in the FG. Results: Comprehensive management was mostly defined as access to multiple treatments (54%), and this concept was expanded in the FG toward understanding CLP at all levels. Monoparental families spend their income on treatments (29%) than nuclear families (0%) ( P = .001). All parents with high education levels were familiar with healthcare centers specialized in CLP as opposed to 66.7% of parents with basic primary education ( P < .05). Regarding the timeliness of appointments, 12.2% of parents earning between 1 and 2 minimum wages reported some kind of difficulty, whereas those earning less than one minimum wage reported difficulties in 66.7% of cases ( P = .046). Conclusions: All participants reported barriers, which increased or decreased depending on their socioeconomic status. The FG allowed the discussion of alternatives to overcome barriers, such as structural, solidarity, and self-management actions. |
| Databáze: | MEDLINE |
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