Identifying children with medical complexity in administrative datasets in a Canadian context: study protocol.

Autor:	McCulloch H; Children's Health Program, IWK Health Centre, Halifax, Nova Scotia, Canada., Breneol S; School of Nursing, Dalhousie University, Halifax, Nova Scotia, Canada., Stewart SA; Faculty of Medicine, Dalhousie University, Halifax, Nova Scotia, Canada., Magalhaes S; NB Institute for Research, Data and Training, University of New Brunswick, Fredericton, New Brunswick, Canada., Somerville M; School of Nursing, Dalhousie University, Halifax, Nova Scotia, Canada., Sheriko J; Pediatrics, IWK Health Centre, Halifax, Nova Scotia, Canada., Best S; Children's Health Program, IWK Health Centre, Halifax, Nova Scotia, Canada., Burgess S; Children's Health Program, IWK Health Centre, Halifax, Nova Scotia, Canada., Jeffers E; Maritime SPOR SUPPORT Unit, Halifax, Nova Scotia, Canada., Standing MA; Centre for Health and Community Research, University of Prince Edward Island, Charlottetown, Prince Edward Island, Canada., King S; Children's Health Program, IWK Health Centre, Halifax, Nova Scotia, Canada., Clegg J; Children's Health Program, IWK Health Centre, Halifax, Nova Scotia, Canada., Curran JA; School of Nursing, Dalhousie University, Halifax, Nova Scotia, Canada jacurran@dal.ca.; Pediatrics, IWK Health Centre, Halifax, Nova Scotia, Canada.
Jazyk:	angličtina
Zdroj:	BMJ open [BMJ Open] 2022 Mar 18; Vol. 12 (3), pp. e057843. Date of Electronic Publication: 2022 Mar 18.
DOI:	10.1136/bmjopen-2021-057843
Abstrakt:	Introduction: Children with medical complexity and their families are an important population of interest within the Canadian healthcare system. Despite representing less than 1% of the paediatric population, children with medical complexity require extensive care and account for one third of paediatric healthcare expenditures. Opportunities to conduct research to assess disparities in care and appropriate allocation of health resources relies on the ability to accurately identify this heterogeneous group of children. This study aims to better understand the population of children with medical complexity in the Canadian Maritimes, including Nova Scotia (NS), New Brunswick (NB) and Prince Edward Island (PEI). This will be achieved through three objectives: (1) Evaluate the performance of three algorithms to identify children with medical complexity in the Canadian Maritimes in administrative data; then using the 'best fit' algorithm (2) Estimate the prevalence of children with medical complexity in the Canadian Maritimes from 2003 to 2017 and (3) Describe patterns of healthcare utilisation for this cohort of children across the Canadian Maritimes. Methods and Analysis: The research will be conducted in three phases. In Phase 1, an expert panel will codevelop a gold-standard definition of paediatric medical complexity relevant to the Canadian Maritime population. A two-gate validation process will then be conducted using NS data and the gold-standard definition to determine the 'best fit' algorithm. During phase 2 the 'best fit' algorithm will be applied to estimate the prevalence of children with medical complexity in NS, NB and PEI. Finally, in phase 3 will describe patterns of healthcare utilisation across the Canadian Maritimes. Ethics and Dissemination: Ethics approval for this protocol was granted by the institutional research ethics board at the IWK Health Centre (REB # 1026245). A waiver of consent was approved. This study will use an integrated knowledge translation approach, where end users are involved in each stage of the project, which could increase uptake of the research into policy and practice. The findings of this research study will be submitted for publication and dissemination through conference presentations and with our end users. Competing Interests: Competing interests: None declared. (© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
Databáze:	MEDLINE
Externí odkaz:	Zobrazit plný text záznamu