ConectAR: Collaborative network of patients with asthma and carers actively involved in health research: a protocol for patient and public involvement.

Autor: Sá-Sousa A; Department of Community Medicine, Health Information and Decision (MEDCIDS), Faculty of Medicine, University of Porto, Porto, Portugal.; Center for Health Technology and Services Research (CINTESIS.UP), University of Porto, Porto, Portugal., Rodrigues T; Center for Health Technology and Services Research (CINTESIS.UP), University of Porto, Porto, Portugal.; Centro Hospitalar Vila Nova de Gaia Espinho (CHVNGE), Vila Nova de Gaia, Porto, Portugal., Fernandes S; Human Reproduction Unit, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal., Santos AM; Instituto de Ciências Biomédicas Abel Salazar, University of Porto, Porto, Portugal., Garcia-Lema I; Department of Community Medicine, Health Information and Decision (MEDCIDS), Faculty of Medicine, University of Porto, Porto, Portugal.; Center for Health Technology and Services Research (CINTESIS.UP), University of Porto, Porto, Portugal., Costa ED; Department of Design, Faculty of Fine Arts, University of Porto, Porto, Portugal., Chaves Loureiro C; Pneumology Unit, Hospitais da Universidade de Coimbra, Centro Hospitalar e Universitário de Coimbra, Coimbra, Portugal.; Centre of Pneumology, Faculty of Medicine, University of Coimbra, Coimbra, Portugal., Boechat JL; Center for Health Technology and Services Research (CINTESIS.UP), University of Porto, Porto, Portugal.; Basic and Clinical Immunology Unit, Department of Pathology, Faculty of Medicine, University of Porto, Portugal., Baía Reis A; Centre for Media and Communication, University of Passau, Passau, Germany., Figueiredo D; Center for Health Technology and Services Research (CINTESIS.UP), University of Porto, Porto, Portugal.; Center for Health Technology and Services Research (CINTESIS.UA), School of Health Sciences, University of Aveiro, Aveiro, Portugal., Fonseca JA; Department of Community Medicine, Health Information and Decision (MEDCIDS), Faculty of Medicine, University of Porto, Porto, Portugal.; Center for Health Technology and Services Research (CINTESIS.UP), University of Porto, Porto, Portugal.; Allergy Unit, Instituto CUF Porto e Hospital CUF Porto, Porto, Portugal., Neves AL; Department of Community Medicine, Health Information and Decision (MEDCIDS), Faculty of Medicine, University of Porto, Porto, Portugal.; Center for Health Technology and Services Research (CINTESIS.UP), University of Porto, Porto, Portugal.; Imperial NIHR Patient Safety Translational Research Centre, Institute of Global Health Innovation, Imperial College London, London, U.K., Jácome C; Department of Community Medicine, Health Information and Decision (MEDCIDS), Faculty of Medicine, University of Porto, Porto, Portugal.; Center for Health Technology and Services Research (CINTESIS.UP), University of Porto, Porto, Portugal.
Jazyk: angličtina
Zdroj: European annals of allergy and clinical immunology [Eur Ann Allergy Clin Immunol] 2023 Jul; Vol. 55 (4), pp. 180-188. Date of Electronic Publication: 2022 Mar 10.
DOI: 10.23822/EurAnnACI.1764-1489.249
Abstrakt: Summary: Background. Patients and Public Involvement in every stage of the patient-centered health research cycle is the key to the development of innovative solutions with an impact on patients' care. Methods. This protocol describes the development of ConectAR, a network to promote the involvement of patients with asthma and their carers in the health research cycle. Results. This protocol comprehends 4 tasks: 1) define the mission, vision, governance and activities of the network through focus groups; 2) establish the communication strategy and tools; 3) test the feasibility of the network in a Delphi study on the research priorities for asthma in Portugal; 4) coordination and dissemination activities. Conclusions. This network will improve research by ensuring that patients and carers have an active role in the co-creation of impactful solutions for asthma.
Databáze: MEDLINE
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