An Inventory of Deceased Donor Family Care and Contact Between Donor Families and Recipients in 15 European Countries.

Autor:	Wind T; Maastricht University Medical Centre, Maastricht, Netherlands., Jansen N; Institute of Health and Care Science, Dutch Transplant Foundation, Leiden, Netherlands., Flodén A; Institute of Health and Care Science, University of Gothenburg, Gothenburg, Sweden.; Department of Anaestesiology, Södra Älvsborgs Hospital, Borås, Sweden., Haase-Kromwijk B; Institute of Health and Care Science, Dutch Transplant Foundation, Leiden, Netherlands., Shaw D; Institute of Biomedical Ethics, University of Basel, Basel, Switzerland.; Department of Health, Ethics and Society, Care and Public Health Research Institute, Maastricht University, Maastricht, Netherlands., Gardiner D; Nottingham University Hospitals NHS Trust, Nottingham, United Kingdom.
Jazyk:	angličtina
Zdroj:	Transplant international : official journal of the European Society for Organ Transplantation [Transpl Int] 2022 Jan 10; Vol. 35, pp. 10188. Date of Electronic Publication: 2022 Jan 10 (Print Publication: 2021).
DOI:	10.3389/ti.2021.10188
Abstrakt:	Families of organ donors play an important role in the deceased organ donation process. The aim of this study was to gain insight into donor family care by creating an inventory of practice in various European countries. A questionnaire about donor family care and contact between donor families and recipients was developed. Representatives of the organ donor professionals of 15 European countries responded (94%). The donor coordinator plays a key role in care for the donor family. All countries provide information about the donation results to the families, although diminished due to privacy laws. Anonymous written contact between donor families and recipients is possible in almost all countries and direct contact in only a few. Remembrance ceremonies exist in most countries. Half of the respondents thought the aftercare could improve. This first inventory shows that differences exist between countries, depending on the organisation of the donation process, the law and the different role of the professionals. Direct contact between donor families and recipients is rarely supported by the donation organisation. To date there has been limited research about the experience of donor family aftercare and we would urge all donation organisations to consider this as a priority area. Competing Interests: The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. (Copyright © 2022 Wind, Jansen, Flodén, Haase-Kromwijk, Shaw and Gardiner.)
Databáze:	MEDLINE
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