Identifying Priorities to Improve the System of Care for Children With Complex Health Needs in North Carolina: Process and Outcomes of Systematic Stakeholder Engagement.

Autor: Sandhu S; Duke-Margolis Center for Health Policy (S Sandhu), Durham, NC; Harvard Medical School (S Sandhu), Boston, Mass., Ming DY; Departments of Pediatrics, Medicine, and Population Health Sciences (DY Ming), Duke University School of Medicine, Durham, NC., Crew C; Children's Health and Discovery Initiative (C Crew), Duke University School of Medicine, Durham, NC., Morreale MC; Legal Aid of North Carolina (MC Morreale), Raleigh, NC; Department of Pediatrics (MC Morreale and NA deJong), UNC School of Medicine, Chapel Hill, NC., Cleveland S; Family Resource Center South Atlantic (S Cleveland), Raleigh, NC; Family Support Network of the Greater Triangle (S Cleveland), Raleigh, NC., Lail J; Jennifer Lail, LLC (J Lail), Durham, NC., de Jong NA; Department of Pediatrics (MC Morreale and NA deJong), UNC School of Medicine, Chapel Hill, NC. Electronic address: dejong@email.unc.edu.
Jazyk: angličtina
Zdroj: Academic pediatrics [Acad Pediatr] 2022 Aug; Vol. 22 (6), pp. 1041-1048. Date of Electronic Publication: 2022 Jan 26.
DOI: 10.1016/j.acap.2022.01.011
Abstrakt: Objective: Children with complex health needs (CCHN) have both medical (eg, chronic conditions) and health-related social needs (eg, potentially adverse social determinants of health) that require ongoing health care and support from multiple community service providers. National standards developed for populations defined by health needs (CYSHCN) provide a framework for stakeholders to plan system-level improvements in care delivery for CCHN, but improvement efforts should reflect the priorities of their families and providers. This article describes a process of prioritizing system-level efforts to improve the health and well-being of CCHN and families in North Carolina (NC), using systematic stakeholder engagement and modified Delphi expert ratings.
Methods: We surveyed stakeholders with experience caring for CCHN using an open-ended, 3-item instrument to identify opportunities to improve systems of care. Using directed qualitative content analysis, we synthesized responses into a master list of potential improvement topics. Using a modified Delphi approach, a 16-member advisory committee rated all topics for importance and urgency, on 9-point Likert scales over 2 rounds; then ratings for each topic were ranked (low, medium, high) to establish relative priority.
Results: Forty seven individuals from 31 counties around NC provided survey responses, yielding 59 improvement topics in 10 domains. Through the modified Delphi method process, 21 topics (36%) received the highest rankings, largely representing access to community- and home-based services, equity, and enhancement of the pediatric workforce.
Conclusions: Priorities identified by stakeholders will inform advocacy, policy, and improvement efforts. Next steps for the coalition include developing improvement projects to implement stakeholder-recommended actions for the highest-priority topics.
(Copyright © 2022 The Authors. Published by Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
Externí odkaz: