Finnish HIV Quality of Care Register (FINHIV).

Autor: Mutru M; Faculty of Medicine, University of Helsinki, Helsinki, Finland mikaela.mutru@helsinki.fi.; Department of Infectious Diseases, Helsinki University Central Hospital Inflammation Center, Helsinki, Finland., Isosomppi S; Department of Health Security, Finnish Institute for Health and Welfare, Helsinki, Finland., Aho I; Faculty of Medicine, University of Helsinki, Helsinki, Finland.; Department of Infectious Diseases, Helsinki University Central Hospital Inflammation Center, Helsinki, Finland., Liitsola K; Department of Health Security, Finnish Institute for Health and Welfare, Helsinki, Finland., Brummer-Korvenkontio H; Department of Health Security, Finnish Institute for Health and Welfare, Helsinki, Finland., Ollgren J; Department of Health Security, Finnish Institute for Health and Welfare, Helsinki, Finland., Luomala O; Department of Health Security, Finnish Institute for Health and Welfare, Helsinki, Finland., Kivelä P; Faculty of Medicine, University of Helsinki, Helsinki, Finland.; Department of Infectious Diseases, Helsinki University Central Hospital Inflammation Center, Helsinki, Finland.
Jazyk: angličtina
Zdroj: BMJ open [BMJ Open] 2022 Jan 21; Vol. 12 (1), pp. e053287. Date of Electronic Publication: 2022 Jan 21.
DOI: 10.1136/bmjopen-2021-053287
Abstrakt: Purpose: The Finnish HIV Quality of Care Register (FINHIV) was created to: (1) estimate the number of people living with HIV (PLWH) in Finland, (2) evaluate the national level of antiretroviral medication use and viral suppression, (3) examine the change in the HIV epidemic in Finland to pinpoint issues to address and (4) enable evaluation of the health of the PLWH by combining the FINHIV data with other national healthcare data.
Participants: The FINHIV includes all people diagnosed or being treated for HIV infection in Finland since 1984. The register was formed in 2020 by combining data from the National Infectious Diseases Register (information from time of diagnosis, data from 1984) and from the 21 HIV Clinics that treat HIV-positive patients in Finland (earliest data from 1998). The register population forms a nationwide, open cohort with yearly updates; currently it consists of 4218 PLWH (including 718 deceased) with HIV diagnosed or treated in Finland 1984-2019. Current rate of new cases is 150 cases/year.
Findings to Date: From the FINHIV data, we can confirm that Finland has reached the Joint United Nations Programme for HIV/AIDS (UNAIDS) 90-90-90 targets set for 2020, and that the proportion of virally suppressed is constant between all 21 HIV Clinics in Finland, despite their varying size. Linkage to care is estimated at 94.3% of those diagnosed. In contrast to the treatment results, more than half of the PLWH have been diagnosed at a late stage, and the proportion has increased since 2000.
Future Plans: Combinations of FINHIV data with other national healthcare register data in Finland will provide further information on other aspects of the health of the PLWH in a high-resource setting (eg, comorbidities, sexual health and use of healthcare resources). Additionally, implementation of patient-reported experience and outcome measures within the FINHIV is ongoing.
Competing Interests: Competing interests: Outside of the present work, PK and IA have received research grants from Gilead Nordic Fellowship Programme and report receiving personal fees (for lectures, travel expenses and Advisory Board participation) from Gilead, GSK and Merck.
(© Author(s) (or their employer(s)) 2022. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)
Databáze: MEDLINE