Informant-based assessment instruments for dementia in people with intellectual disability: A systematic review and standardised evaluation.

Autor: Zeilinger EL; Department of Internal Medicine I, Medical University of Vienna, Vienna, Austria. Electronic address: elisabeth.zeilinger@meduniwien.ac.at., Zrnic Novakovic I; Faculty of Psychology, University of Vienna, Vienna, Austria., Komenda S; Faculty of Psychology, University of Vienna, Vienna, Austria., Franken F; Psychologische Hochschule Berlin, Berlin, Germany., Sobisch M; Faculty of Psychology, University of Vienna, Vienna, Austria., Mayer AM; Institute of Psychology, University of Duisburg-Essen, Essen, Germany., Neumann LC; Department of Neurology, University Hospital, LMU Munich, Munich, Germany., Loosli SV; Department of Neurology, University Hospital, LMU Munich, Munich, Germany., Hoare S; NELFT NHS Foundation Trust Goodmayes Hospital, Ilford, Essex, United Kingdom., Pietschnig J; Faculty of Psychology, University of Vienna, Vienna, Austria.
Jazyk: angličtina
Zdroj: Research in developmental disabilities [Res Dev Disabil] 2022 Feb; Vol. 121, pp. 104148. Date of Electronic Publication: 2021 Dec 27.
DOI: 10.1016/j.ridd.2021.104148
Abstrakt: Background: Dementia in people with intellectual disability (ID) is frequent but hard to recognise. Evidence-based recommendations for suitable instruments are lacking.
Aims: The present study set out to evaluate informant-based dementia assessment instruments and to provide evidence-based recommendations for instruments most suitable in clinical practice and research.
Method and Procedures: A systematic review was conducted across ten international electronic databases. The COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) guidelines, including a risk of bias assessment, was applied to extract information and to evaluate measurement properties and the quality of available evidence.
Outcomes and Results: In total, 42 studies evaluating 18 informant-based assessment instruments were analysed. For screening purposes, we recommend the Behavioral and Psychological Symptoms of Dementia in Down Syndrome Scale (BPSD-DS), the Cognitive Scale for Down Syndrome (CS-DS), and the Dementia Screening Questionnaire for Individuals with Intellectual Disabilities (DSQIID). For a more thorough dementia assessment, we recommend the Cambridge Examination for Mental Disorders of Older People with Down's Syndrome and Others with Intellectual Disabilities (CAMDEX-DS).
Conclusions and Implications: Our study informs clinicians and researchers about adequate, well-evaluated dementia assessment instruments for people with ID, and highlights the need for high quality studies, especially regarding content validity.
(Copyright © 2021 The Author(s). Published by Elsevier Ltd.. All rights reserved.)
Databáze: MEDLINE
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