Education in Palliative and End-of-Life Care-Pediatrics: Curriculum Use and Dissemination.

Autor: Postier AC; University of California San Francisco Department of Pediatrics, Center for Pediatric Pain, Palliative and Integrative Medicine (A.C.P., S.J.F.), UCSF Benioff Children's Hospital, San Francisco, California, USA. Electronic address: andrea.postier@ucsf.edu., Wolfe J; Dana-Farber Cancer Institute (J.W.), Boston Children's Hospital, Boston, Massachusetts, USA., Hauser J; Department of Medicine (Palliative Medicine) (J.H.), Northwestern Feinberg School of Medicine, Jesse Brown VA Medical Center, Chicago, Illinois, USA., Remke SS; University of Minnesota School of Social Work (S.S.R.), St. Paul, Minnesota, USA., Baker JN; Division of Quality of Life and Palliative Care (J.N.B.), St. Jude Children's Research Hospital, Memphis, Tennessee, USA., Kolste A; Children's Hospitals and Clinics of Minnesota (A.K.), Minneapolis, Minnesota, USA., Dussel V; Center for Research and Implementation in Palliative Care (V.D.), Instituto de Efectividad Clinica y Sanitaria, Buenos Aires, Argentina; Dana-Farber Cancer Institute/Boston Children's Cancer and Blood Disorders Center, Boston, Massachusetts, USA., Bernadá M; School of Medicine, Universidad de la República (M.B.), Montevideo, Uruguay., Widger K; Lawrence S. Bloomberg Faculty of Nursing (K.W.), University of Toronto, Paediatric Advanced Care Team (PACT), The Hospital for Sick Children, Toronto, Ontario, Canada., Rapoport A; Paediatric Advanced Care Team (PACT) (A.R.), The Hospital for Sick Children, Emily's House Children's Hospice, Departments of Paediatrics and Family & Community Medicine, University of Toronto, Toronto, Ontario, Canada., Drake R; Palliative Care and Pain Medicine (R.D.), Starship Children's Health, Auckland, New Zealand., Chong PH; HCA Hospice Care (P.H.C), Singapore., Friedrichsdorf SJ; University of California San Francisco Department of Pediatrics, Center for Pediatric Pain, Palliative and Integrative Medicine (A.C.P., S.J.F.), UCSF Benioff Children's Hospital, San Francisco, California, USA.
Jazyk: angličtina
Zdroj: Journal of pain and symptom management [J Pain Symptom Manage] 2022 Mar; Vol. 63 (3), pp. 349-358. Date of Electronic Publication: 2021 Dec 08.
DOI: 10.1016/j.jpainsymman.2021.11.017
Abstrakt: Context: The majority of seriously ill children do not have access to specialist pediatric palliative care (PPC) services nor to clinicians trained in primary PPC. The Education in Palliative and End-of-Life Care (EPEC)-Pediatrics curriculum and dissemination project was created in 2011 in response to this widespread education and training need. Since its implementation, EPEC-Pediatrics has evolved and has been disseminated worldwide.
Objectives: Assessment of past EPEC-Pediatrics participants' ("Trainers") self-reported PPC knowledge, attitudes, and skills; use of the curriculum in teaching; and feedback about the program's utility and future direction.
Methods: From 2011 to 2019 survey of EPEC-Pediatrics past conference participants, using descriptive and content analyses.
Results: About 172 of 786 (22% response rate) EPEC-Pediatrics past participants from 59 countries across six continents completed the survey. Trainers, including Master Facilitators (MFs), used the curriculum mostly to teach interdisciplinary clinicians and reported improvement in teaching ability as well as in attitude, knowledge, and skills (AKS) in two core domains of PPC: communication and pain and symptom management. The most frequently taught modules were about multimodal management of distressing symptoms. Trainers suggested adding new content to the current curriculum and further expansion in low-medium income countries. Most (71%) reported improvements in the clinical care of children with serious illnesses at their own institutions.
Conclusion: EPEC-Pediatrics is a successful curriculum and dissemination project that improves participants' self-reported teaching skills and AKS's in many PPC core domains. Participating clinicians not only taught and disseminated the curriculum content, they also reported improvement in the clinical care of children with serious illness.
(Copyright © 2021 The Authors. Published by Elsevier Inc. All rights reserved.)
Databáze: MEDLINE
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