Child/adolescent caring for the disabled sibling in the family world.

Autor:	Freitag VL; Universidade de Cruz Alta (UNICRUZ), Centro de Ciência da Saúde e Agrárias, Departamento de Enfermagem. Cruz Alta, Rio Grande do Sul, Brasil., Motta MDGCD; Universidade Federal do Rio Grande do Sul (UFRGS), Escola de Enfermagem, Departamento Materno Infantil. Porto Alegre, Rio Grande do Sul, Brasil.; Universidade Federal do Rio Grande do Sul (UFRGS), Escola de Enfermagem, Programa de Pós-Graduação em Enfermagem. Porto Alegre, Rio Grande do Sul, Brasil., Milbrath VM; Universidade Federal de Pelotas (UFPel), Faculdade de Enfermagem, Programa de Pós-Graduação em Enfermagem. Pelotas, Rio Grande do Sul, Brasil., Gabatz RIB; Universidade Federal de Pelotas (UFPel), Faculdade de Enfermagem. Pelotas, Rio Grande do Sul, Brasil., Bazzan JS; Universidade Federal de Pelotas (UFPel), Faculdade de Enfermagem, Programa de Pós-Graduação em Enfermagem. Pelotas, Rio Grande do Sul, Brasil.
Jazyk:	English; Portuguese
Zdroj:	Revista gaucha de enfermagem [Rev Gaucha Enferm] 2021 Dec 06; Vol. 42, pp. e20200153. Date of Electronic Publication: 2021 Dec 06 (Print Publication: 2021).
DOI:	10.1590/1983-1447.2021.20200153
Abstrakt:	Objective: To understand the meaning for the child/adolescent of participating in the care of the disabled sibling. Method: Research in the light of the Heideggerian phenomenological approach, carried out in the northern region of Rio Grande do Sul - Brazil. Twenty children/adolescents who lived with their disabled sibling participated. The information was collected through phenomenological interviews, interpreted in the light of hermeneutics from Paul Ricoeur. Results: The child/adolescent helps the family in caring for the disabled sibling, in feeding, bathing, dressing, among other activities, at sometimes there is excessive responsibility of the child/adolescent for the care of the sibling. Final Considerations: The inclusion of the child/adolescent who lives with a disabled sibling and their families in the planning and implementation of health care activities is essential. It stands out as a research contribution to the qualification of the practice of health professionals, especially the nurse in the scope of care for the child/adolescent who experience this phenomenon.
Databáze:	MEDLINE
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