Rheumatic disease and fatigue: Participants' experiences of an activity-pacing group.

Autor: Søvik ML; Department of Occupational Therapy, Orthopedic Clinic, Haukeland University Hospital, Bergen, Norway.; Department of Health and Functioning, Western Norway University of Applied Sciences, Bergen, Norway., Eide REM; Department of Occupational Therapy, Orthopedic Clinic, Haukeland University Hospital, Bergen, Norway., Rene B; Department of Occupational Therapy, Orthopedic Clinic, Haukeland University Hospital, Bergen, Norway., Strand MM; Patient Research Partner, Bergen, Norway., Devik I; Department of Rheumatology, Nordland Hospital, Bodø, Norway., Liland DE; Patient Participation Group, Haukeland University Hospital, Bergen, Norway., Kjeken I; National Advisory Unit on Rehabilitation in Rheumatology, Division of Rheumatology and Research, Diakonhjemmet Hospital, Oslo, Norway., Taule T; Department of Occupational Therapy, Orthopedic Clinic, Haukeland University Hospital, Bergen, Norway.
Jazyk: angličtina
Zdroj: Scandinavian journal of occupational therapy [Scand J Occup Ther] 2023 Jul; Vol. 30 (5), pp. 628-639. Date of Electronic Publication: 2021 Nov 09.
DOI: 10.1080/11038128.2021.1998609
Abstrakt: Background: Fatigue is a common symptom of inflammatory rheumatic disease and has a great impact on everyday life. Activity-pacing is proposed as an intervention to increase participation in meaningful activities.
Aims: To explore participants' experiences with an activity-pacing group, how participants perceived self-managing everyday life after group attendance, and their reflections on unmet needs that could enhance self-management of everyday life with fatigue.
Materials and Methods: Semi-structured interviews were conducted with 10 participants who had attended an activity-pacing group. Thematic analyses were conducted.
Findings: Prior to group attendance, the participants expressed an awareness of their lack of knowledge of fatigue. Through group attendance, they increased their understanding of fatigue and their ability to apply strategies to better manage everyday life. Participants found it difficult to balance their energy use and realised that implementing activity-pacing strategies takes time. Therefore, they requested follow-up sessions with the activity-pacing group. They also desire that rheumatologists pay more attention to and acknowledge fatigue.
Conclusions and Significance: Enhancing the understanding of fatigue and how to manage everyday life with fatigue, appears to be important. Group interventions led by occupational therapists and with a focus on activity-pacing may be a suitable approach. Follow-up sessions are recommended.
Databáze: MEDLINE
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