Self-regulation as rehabilitation outcome: what is important according to former patients?

Autor:	Mol TI; Centre of Excellence for Rehabilitation Medicine, University Medical Centre Utrecht, UMC Utrecht Brain Centre, Utrecht, the Netherlands.; Department of Rehabilitation Medicine, University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands., van Bennekom CAM; Research and Development Division, Heliomare Rehabilitation Centre, Wijk aan Zee, the Netherlands.; Coronel Institute of Occupational Health, Amsterdam University Medical Centre, University of Amsterdam, Amsterdam, the Netherlands., Scholten EWM; Centre of Excellence for Rehabilitation Medicine, University Medical Centre Utrecht, UMC Utrecht Brain Centre, Utrecht, the Netherlands., Visser-Meily JMA; Centre of Excellence for Rehabilitation Medicine, University Medical Centre Utrecht, UMC Utrecht Brain Centre, Utrecht, the Netherlands.; Department of Rehabilitation, Physical Therapy Science & Sports, University Medical Centre Utrecht, UMC Utrecht Brain Centre, Utrecht, the Netherlands., Reneman MF; Department of Rehabilitation Medicine, University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands., Riedstra A; Research Committee Dutch Spinal Cord Association, Utrecht, the Netherlands., de Groot V; Department of Rehabilitation Medicine, Amsterdam Movement Sciences, Amsterdam UMC, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands., Meijer JWG; Centre of Excellence for Rehabilitation Medicine, University Medical Centre Utrecht, UMC Utrecht Brain Centre, Utrecht, the Netherlands.; De Hoogstraat Rehabilitation, Utrecht, the Netherlands., Bult MK; Cerebral Palsy Netherlands/Spina Bifida & Hydrocephalus Netherlands, Utrecht, The Netherlands., Post MWM; Centre of Excellence for Rehabilitation Medicine, University Medical Centre Utrecht, UMC Utrecht Brain Centre, Utrecht, the Netherlands.; Department of Rehabilitation Medicine, University Medical Centre Groningen, University of Groningen, Groningen, the Netherlands.
Jazyk:	angličtina
Zdroj:	Disability and rehabilitation [Disabil Rehabil] 2022 Dec; Vol. 44 (24), pp. 7484-7490. Date of Electronic Publication: 2021 Nov 06.
DOI:	10.1080/09638288.2021.1998663
Abstrakt:	Purpose: Self-regulation refers to self-management and self-control, with or without disability. Outcomes of rehabilitation with respect to self-regulation are unclear. This study aims to identify elements of self-regulation that former patients consider important in the context of medical rehabilitation. Materials and Methods: Qualitative exploration based on focus group discussions (FGDs). Transcripts were analysed using thematic analysis as well as open coding. Forty individuals participated in seven diagnosis-related FGDs. Results: Six subthemes were raised in the FGDs which could be merged into three main themes. Two main themes are conditional for regaining self-regulation: 1) having insight into one's condition and abilities (i.e., insight into impairments. consequences of impairments. abilities); 2) to know how to cope with the consequences of the condition (be able to communicate limitations; have to trust in body and functioning). The subject of the last theme 3) is how to apply self-regulation in one's own life (to make use of abilities and optimize functioning). Conclusions: Three main themes of self-regulation in the context of medical rehabilitation were identified by former patients, partly relating to the ability to self-regulate and partly to the execution of self-regulation. This knowledge can be used to define specific rehabilitation goals and further develop rehabilitation outcome measurement.IMPLICATIONS FOR REHABILITATIONAwareness of the fundamental subthemes of self-regulation in rehabilitation will positively contribute to theory building and improve clinical practice (e.g., goal setting).Paying explicit attention to the six subthemes as standard elements of rehabilitation will help to provide a comprehensive view concerning self-regulation.The conceptual model of self-regulation, based on patient perspectives, can contribute to the measurement of rehabilitation outcomes.
Databáze:	MEDLINE
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