Long-term Occupational Consequences for Families of Children With Type 1 Diabetes: The Mothers Take the Burden.

Autor:	Dehn-Hindenberg A; Medical Psychology, Hannover Medical School, Hannover, Germany., Saßmann H; Medical Psychology, Hannover Medical School, Hannover, Germany., Berndt V; Social-Pediatric Centre Lichtenberg, Sana Hospital Group Berlin-Brandenburg, Berlin, Germany., Biester T; Diabetes Centre for Children and Adolescents, Children's Hospital Auf der Bult, Hannover, Germany., Heidtmann B; Catholic Children's Hospital Wilhelmstift, Hamburg, Germany., Jorch N; University Clinic for Pediatrics, Evangelisches Klinikum Bethel, Bielefeld University, Bielefeld, Germany., Kim-Dorner SJ; Medical Psychology, Hannover Medical School, Hannover, Germany., Konrad K; Pediatrics, Elisabeth-Hospital Essen, Essen, Germany., Lilienthal E; University Clinic, University Children's Hospital, Ruhr-University Bochum, Bochum, Germany., Nellen-Hellmuth N; Clinic for Pediatrics, Leopoldina-Hospital Schweinfurt, Schweinfurt, Germany., Neu A; Pediatric Endocrinology and Diabetes, Eberhard Karls University Tuebingen, Tuebingen, Germany., Ziegler R; Diabetes Clinic for Children and Adolescents Muenster, Muenster, Germany., Lange K; Medical Psychology, Hannover Medical School, Hannover, Germany lange.karin@mh-hannover.de.
Jazyk:	angličtina
Zdroj:	Diabetes care [Diabetes Care] 2021 Dec; Vol. 44 (12), pp. 2656-2663. Date of Electronic Publication: 2021 Oct 25.
DOI:	10.2337/dc21-0740
Abstrakt:	Objective: To investigate the occupational and financial consequences for parents following the onset of type 1 diabetes in their child. Research Design and Methods: A questionnaire assessing occupational and financial situations before and in the first year after the onset of diabetes was distributed to all families with a child ≤14 years of age at diagnosis with a diabetes duration of at least 12 months in nine German pediatric diabetes centers. Results: Data of 1,144 children (mean age at diagnosis 6.7 [3.6] years; 46.5% female) and their families were obtained. Mothers' occupational status reflected in paid working hours was significantly reduced in the first year after their child's diabetes diagnosis ( P < 0.001). Overall, 15.1% of mothers stopped working, and 11.5% reduced working hours. Mothers of preschool children were particularly affected. Fathers' working status hardly changed ( P = 0.75). Nearly half of the families (46.4%) reported moderate to severe financial losses. Compared with an earlier similar study in 2003, significant negative occupational consequences for mothers and financial burden on families remained unchanged in 2018 ( P = 0.59 and 0.31, respectively). Conclusions: Mothers of young children with newly diagnosed diabetes experienced negative consequences in their occupational situation. This inequality for mothers can have long-term negative consequences for their mental health and future economic situation. There is an urgent need for action to reduce the burden on families and to provide professional, social, and regulatory support, especially for mothers of young children with diabetes. (© 2021 by the American Diabetes Association.)
Databáze:	MEDLINE
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