Are we ready for a name change for schizophrenia? A survey of multiple stakeholders.

Autor: Mesholam-Gately RI; Department of Psychiatry, Harvard Medical School, 25 Shattuck St., Boston, MA 02115, USA; Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA. Electronic address: rmeshola@bidmc.harvard.edu., Varca N; Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA., Spitzer C; Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA., Parrish EM; Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA; San Diego State University/University of California San Diego Joint Doctoral Program in Clinical Psychology, San Diego, CA 92182, USA., Hogan V; Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA., Behnke SH; Department of Psychiatry, Harvard Medical School, 25 Shattuck St., Boston, MA 02115, USA; Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA., Larson L; Consumer Advisory Board, Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA., Rosa-Baez C; Consumer Advisory Board, Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA., Schwirian N; Consumer Advisory Board, Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA., Stromeyer C 4th; Consumer Advisory Board, Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA., Williams MJ; Consumer Advisory Board, Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA., Saks ER; Gould School of Law, University of Southern California, 699 Exposition Boulevard, Los Angeles, CA 90089, USA., Keshavan MS; Department of Psychiatry, Harvard Medical School, 25 Shattuck St., Boston, MA 02115, USA; Massachusetts Mental Health Center Public Psychiatry Division of the Beth Israel Deaconess Medical Center, 75 Fenwood Rd., Boston, MA 02115, USA.
Jazyk: angličtina
Zdroj: Schizophrenia research [Schizophr Res] 2021 Dec; Vol. 238, pp. 152-160. Date of Electronic Publication: 2021 Oct 20.
DOI: 10.1016/j.schres.2021.08.034
Abstrakt: About one in 100 people worldwide are diagnosed with schizophrenia. Many people advocate for a name change for the condition, pointing to the stigma and discrimination associated with the term "schizophrenia", as well as to how the name poorly characterizes features of the illness. The purpose of this project was to collect opinions from a broad, diverse sample of stakeholders about possible name changes for schizophrenia. The project represented a partnership between researchers, clinicians, and those with lived experience with psychosis. The group developed a survey to assess opinions about the need for change in the name schizophrenia as well as potential alternate names. We accumulated 1190 responses from a broad array of community stakeholders, including those with lived experience of mental illness, family members, clinicians, researchers, government officials, and the general public. Findings indicated that the majority of respondents (74.1%) favored a name change for schizophrenia. Most (71.4%) found the name stigmatizing. Of the proposed alternate names, those with the most support included "Altered Perception Syndrome", "Psychosis Spectrum Syndrome", and "Neuro-Emotional Integration Disorder". Survey findings provide strong support for renaming schizophrenia. Most expressed hope that a name change will reduce stigma and discrimination.
(Copyright © 2021 Elsevier B.V. All rights reserved.)
Databáze: MEDLINE
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