Development of an environmental contextual factor item set relevant to global functioning and health in patients with axial spondyloarthritis.

Autor:	Kiltz U; Rheumatology Department, Rheumazentrum Ruhrgebiet, Herne, Germany.; Medical School, Ruhr-Universität Bochum, Bochum, Germany., Boonen A; Department of Internal Medicine, Division of Rheumatology, Maastricht University Medical Center, Maastricht, the Netherlands.; Faculty of Health Life Sciences and Medicine, Care and Public Health Research Institute (CAPHRI), Research line Functioning, rehabilitation and Participation, Maastricht University, Maastricht, the Netherlands., van der Heijde D; Department of Rheumatology, Leiden University Medical Center, Leiden, the Netherlands., Bautista-Molano W; Rheumatology Department, University Hospital Fundación Santa Fe de Bogotá, and School of Medicine, Universidad El Bosque, Bogotá, Colombia., Burgos Vargas R; Department of Rheumatology, Hospital General de Mexico Universidad Nacional Autónoma, Mexico., Chiowchanwisawakit P; Department of Medicine, Faculty of Medicine Siriraj Hospital, Mahidol University, Bangkok, Thailand., El-Zorkany B; Rheumatology Department, Cairo University, Cairo, Egypt., Gaydukova I; Depatrment of therapy and rheumatology, North-Western Medical University, St Petersburg, Russia., Geher P; Department of Rheumatology, Semmelweis University, Budapest, Hungary., Gossec L; Department of Rheumatology, Sorbonne Université, INSERM, Institut Pierre Louis d'Epidémiologie et de Santé Publique, Paris France.; Rheumatology Department, Pitié-Salpêtrière Hospital, AP-HP Sorbonne Université, Paris, France., Gilio M; Department of Internal Medicine, 'San Carlo' Hospital Potenza and Madonna Delle Grazie Hospital of Matera, Potenza, Italy., Grazio S; Department of Rheumatology, Physical and Rehabilitation Medicine, Sestre Milosrdnice University Clinical Center, Zagreb, Croatia., Gu J; Department of Rheumatology, University Guangzhou, Guangzhou, China., Khan MA; Department of Medicine, Case Western Reserve University School of Medicine, Cleveland, OH, USA., Kim TJ; Department of Rheumatology, Chonnam National University Medical School and Hospital, Gwangju, South Korea., Maksymowych WP; Department of Medicine, University of Alberta, Edmonton, Canada., Marzo-Ortega H; Department of Rheumatology, NIHR Leeds Biomedical Research Centre, Chapel Allerton Hospital, Leeds, and Leeds Institute of Rheumatic and Musculoskeletal Medicine, University of Leeds, Leeds, UK., Navarro-Compán V; Department of Rheumatology, IdiPaz, University Hospital La Paz, Madrid, Spain., Ozgocmen S; Department of Rheumatology, Istinye University, Medicalpark Gaziosmanpasa Hospital, Istanbul, Turkey., Patrikos D; Department of Rheumatology, Metropolitan Hospital Piraeus, Piraeus, Greece., Pimentel-Santos FM; Rheumatology Department, NOVA Medical School, Universidade Nova De Lisboa, Lisbon, Portugal., Reveille J; Department of Internal Medicine, University of Texas Health Science Center at Houston, Houston, TX, USA., Schirmer M; Department of Internal Medicine, Clinic II, Innsbruck Medical University, Innsbruck, Austria., Stebbings S; Department of Medicine, University of Otago, Dunedin School of Medicine, Dunedin, New Zealand., Van den Bosch F; Molecular Immunology and Inflammation unit, VIB Center for Inflammation Research, Ghent, Belgium.; Department of Rheumatology, Ghent University Hospital, Ghent, Belgium., Weber U; Practice Buchsbaum, Department of Rheumatology, Schaffhausen, Switzerland., Braun J; Rheumatology Department, Rheumazentrum Ruhrgebiet, Herne, Germany.; Medical School, Ruhr-Universität Bochum, Bochum, Germany.
Jazyk:	angličtina
Zdroj:	Rheumatology (Oxford, England) [Rheumatology (Oxford)] 2022 May 05; Vol. 61 (5), pp. 2054-2062.
DOI:	10.1093/rheumatology/keab653
Abstrakt:	Objective: To describe the development of an Environmental contextual factors (EF) Item Set (EFIS) accompanying the disease specific Assessment of SpondyloArthritis international Society Health Index (ASAS HI). Method: First, a candidate item pool was developed by linking items from existing questionnaires to 13 EF previously selected for the International Classification of Functioning, Disability and Health (ICF) /ASAS Core Set. Second, using data from two international surveys, which contained the EF item pool as well as the items from the ASAS HI, the number of EF items was reduced based on the correlation between the item and the ASAS HI sum score combined with expert opinion. Third, the final English EFIS was translated into 15 languages and cross-culturally validated. Results: The initial item pool contained 53 EF addressing four ICF EF chapters: products and technology (e1), support and relationship (e3), attitudes (e4) and health services (e5). Based on 1754 responses of axial spondyloarthritis patients in an international survey, 44 of 53 initial items were removed based on low correlations to the ASAS HI or redundancy combined with expert opinion. Nine items of the initial item pool (range correlation 0.21-0.49) form the final EFIS. The EFIS was translated into 15 languages and field tested in 24 countries. Conclusions: An EFIS is available complementing the ASAS HI and helps to interpret the ASAS HI results by gaining an understanding of the interaction between a health condition and contextual factors. The EFIS emphasizes the importance of support and relationships, as well as attitudes of the patient and health services in relation to self-reported health. (© The Author(s) 2021. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved. For permissions, please email: journals.permissions@oup.com.)
Databáze:	MEDLINE
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