Familial Mediterranean fever: Health-related quality of life and associated variables in a national cohort.

Autor:	Bodur H; Department of Physical Medicine and Rehabilitation, Ankara City Hospital, Ankara, Turkey., Gül Yurdakul F; Department of Physical Medicine and Rehabilitation, Ankara City Hospital, Ankara, Turkey., Duruöz MT; Rheumatology, Marmara University Faculty of Medicine, Istanbul, Turkey., Çay HF; Rheumatology, Antalya Training and Research Hospital, Antalya, Turkey., Uçar Ü; Rheumatology, Antalya Training and Research Hospital, Antalya, Turkey., Keskin Y; Department of Physical Medicine and Rehabilitation, Bezmialem Vakıf University Faculty of Medicine, Istanbul, Turkey., Sargin B; Rheumatology, Adnan Menderes University Faculty of Medicine, Aydın, Turkey., Gürer G; Rheumatology, Adnan Menderes University Faculty of Medicine, Aydın, Turkey., Yurdakul OV; Department of Physical Medicine and Rehabilitation, Bezmialem Vakıf University Faculty of Medicine, Istanbul, Turkey., Çaliş M; Department of Physical Medicine and Rehabilitation, Erciyes University Faculty of Medicine, Kayseri, Turkey., Deveci H; Department of Physical Medicine and Rehabilitation, Gaziosmanpaşa University Faculty of Medicine, Tokat, Turkey., Aydin Y; Department of Physical Medicine and Rehabilitation, Sakarya University Faculty of Medicine, Sakarya, Turkey., Hizmetli S; Rheumatology, Cumhuriyet University Faculty of Medicine, Sivas, Turkey., Çevik R; Department of Physical Medicine and Rehabilitation, Dicle University Faculty of Medicine, Diyarbakır, Turkey., Karahan AY; Department of Physical Medicine and Rehabilitation, Uşak University Faculty of Medicine, Uşak, Turkey., Ataman Ş; Rheumatology, Ankara University Faculty of Medicine, Ankara, Turkey., Ecesoy H; Rheumatology, Necmettin Erbakan University Faculty of Medicine, Konya, Turkey., Günendi Z; Department of Physical Medicine and Rehabilitation, Gazi University Faculty of Medicine, Ankara, Turkey., Toprak M; Department of Physical Medicine and Rehabilitation, Van Yüzüncü Yıl University Faculty of Medicine, Van, Turkey., Şen N; Rheumatology, Kartal Dr. Lütfi Kırdar Training and Research Hospital, İstanbul, Turkey., Altintaş D; Rheumatology, Atatürk University Faculty of Medicine, Erzurum, Turkey., Cengiz AK; Rheumatology, Sivas Numune Training and Research Hospital, Sivas, Turkey., Çağlayan G; Rheumatology, Cumhuriyet University Faculty of Medicine, Sivas, Turkey., Demir AN; Rheumatology, Akdeniz University Faculty of Medicine, Antalya, Turkey., Kaplan H; Department of Physical Medicine and Rehabilitation, Erciyes University Faculty of Medicine, Kayseri, Turkey., Ketenci S; Rheumatology, Giresun University Faculty of Medicine, Giresun, Turkey., Melikoğlu MA; Rheumatology, Atatürk University Faculty of Medicine, Erzurum, Turkey., Nayimoğlu M; Department of Physical Medicine and Rehabilitation, Namık Kemal University Faculty of Medicine, Tekirdağ, Turkey., Nas K; Department of Physical Medicine and Rehabilitation, Sakarya University Faculty of Medicine, Sakarya, Turkey., Sarifakioğlu B; Department of Physical Medicine and Rehabilitation, Namık Kemal University Faculty of Medicine, Tekirdağ, Turkey., Sezer İ; Rheumatology, Akdeniz University Faculty of Medicine, Antalya, Turkey.
Jazyk:	angličtina
Zdroj:	Archives of rheumatology [Arch Rheumatol] 2020 Dec 10; Vol. 36 (2), pp. 159-166. Date of Electronic Publication: 2020 Dec 10 (Print Publication: 2021).
DOI:	10.46497/ArchRheumatol.2021.8215
Abstrakt:	Objectives: This study aims to evaluate the effectivity of Familial Mediterranean Fever Quality of Life (FMF-QoL) Scale for the measurement of QoL in patients with FMF and to perform correlations between related clinical variables in Turkish patients. Patients and Methods: This multicenter prospective study performed between December 2017 and November 2018 included 974 FMF patients (334 males, 640 females; median age: 35; range, 26 to 45 years). Sociodemographic characteristics and clinical features were recorded. All participants were asked to complete the FMF-QoL Scale, Short Form-36 (SF-36), Hospital Anxiety and Depression Scale (HADS), Health Assessment Questionnaire (HAQ), and Functional Assessment of Chronic Illness Therapy (FACIT) Scale. Results: The median FMF-QoL Scale score was 26. Higher FMF-QoL Scale scores were shown to be related to female sex, illiteracy or primary education, monthly low-income (US$<300), smoking, late-onset FMF (>20 years), a higher number of attacks per month (>1/month), and severe disease. FMF-QoL Scale scores were correlated negatively with subscales of SF-36, and positively with HADS-anxiety and HADS-depression scores, HAQ and FACIT. Conclusion: Female sex, smoking, lower educational status, more severe disease, fatigue, and functional impairment were associated with poor QoL. FMF-QoL Scale was noted as a valid and simple patient-reported outcome instrument and correlated with the SF-36 scale. Competing Interests: Conflict of Interest: The authors declared no conflicts of interest with respect to the authorship and/or publication of this article. (Copyright © 2021, Turkish League Against Rheumatism.)
Databáze:	MEDLINE
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