| Autor: |
Wanden-Berghe C; Hospital General Universitario de Alicante. ISABIAL-FISABIO., Campos Martín C; Hospital Universitario Virgen Macarena., Álvarez Hernández J; Servicio de Endocrinología y Nutrición. Hospital Universitario Príncipe de Asturias., Burgos Peláez R; Unidad de Soporte Nutricional. Hospital Universitario Vall d'Hebron., Matía Martín P; Hospital Clínico San Carlos. Instituto de Investigación Sanitaria del Hospital Clínico San Carlos (IdISSC)., de la Cuerda Compés C; Sección de Nutrición. Hospital Universitario Gregorio Marañón., Lobo G; Hospital Universitario Virgen de las Nieves., Martínez Olmos MÁ; Complejo Hospitalario Universitario de Santiago (CHUS)., De Luis Román DA; Hospital Clinico Universitario de Valladolid., Palma Milla S; Instituto de Investigación Sanitaria La Paz (IdiPAZ). Hospital Universitario La Paz., Gonzalo Marín M; Hospital Regional Universitario Carlos Haya., Padín López S; Hospital Universitario Infanta Cristina., Luengo Pérez LM; Hospital Universitario General de Alicante., Santacruz Carmona N; Hospital General Universitario de Alicante. Institut d'Investigació Sanitària i Biomèdica d'Alacant (ISABIAL-FISABIO)., Pintor de la Maza B; Complejo Asistencial de León., Suárez Llanos JP; Hospital Universitario Nuestra Señora de la Candelaria., Irles Rocamora JA; Endocrinology and Nutrition Clinical Management Unit. Hospital Universitario de Valme., Forga Visa MT; Hospital Clínic., Martín Palmero MÁ; Hospital San Pedro., Sánchez Sánchez R; Hospital Universitario Cruces., Cardona Pera D; Hospital de la Santa Creu i Sant Pau., Tejera Pérez C, Ballesta Sánchez C; Hospital Universitari Sant Joan d'Alacant., Higuera Pulgar I; Hospital Universitario General de Villalba., Bonada Sanjaume A; Hospital Universitari Sant Joan de Reus., Penacho Lázaro MÁ; Hospital El Bierzo., Garde Orbaiz C; Hospital Universitario Donostia., Arraiza Irigoyen C; Complejo Hospitalario de Jaén., Martín Folgueras T; Hospital Universitario de Canarias., Virgili Casas N; Hospital Universitario Bellvitge., Cánovas Gaillemin B; Hospital Virgen de la Salud., Maíz Jiménez MI; Unidad de Nutrición Clínica y Dietética. Servicio de Endocrinología y Nutrición. Hospital Universitario 12 de Octubre., Del Olmo García MD; Hospital Universitario Severo Ochoa., Carabaña Pérez F; Hospital Universitario Ramón y Cajal., Parés Marimón RM; Consorci Sanitari de l'Anoia., Morán López JM; Hospital San Pedro de Alcántara., Mauri Roca S; Hospital Universitari Dr. Josep Trueta., García Puente I; Hospital Universitario de Gran Canaria Dr. Negrín., Sánchez-Vilar Burdiel O; Hospital Universitario Fundación Jiménez Díaz., García Delgado Y; Hospital Universitario Insular de Gran Canaria., Miserachs Aranda N; Hospital Fundació Esperit Sant., Calañas Continente A; Hospital Universitario Reina Sofía., Apezetxea Celaya A; Hospital Universitario de Basurto., Pereira Soto MÁ; Complejo Hospitalario Universitario de Santiago (CHUS)., Sánchez Martos EÁ; Corporació Sanitària Parc Taulí., Ponce González MÁ; Hospital Universitario Gran Canaria Dr. Negrín. |
| Abstrakt: |
Introduction: Aim: to present the results of the Spanish home enteral nutrition (HEN) registry of the NADYA-SENPE group for the years 2018 and 2019. Material and methods: from January 1, 2018 to December 31, 2019 the home enteral nutrition registry was recorded, and afterwards a further descriptive and analytical analysis was done. Results: in 2018, 4756 active patients were registered and the prevalence was 101.79 patients per one million inhabitants; in 2019 there were 4633 patients with a prevalence of 98.51 patients per one million inhabitants. They originated in 46 hospitals: 51.3 % were male, and median age was 71.0 years in both periods. The most frequent diagnosis was a neurological disorder that presents with aphagia or severe dysphagia - 58.7 % and 58.2 %, respectively. The main cause of episode termination was death. A total of 116 pediatric patients were registered in 2018 and 115 in 2019. Females represented 57.8 % and 59.1 %, respectively, in each of the periods. Median age at the beginning of HEN was 5 and 7 months. The most commonly recordered diagnostic group (42.2 % and 42.6 %) was included within the other pathologies group, followed by neurological disorders that present with aphagia or severe dysphagia in 41.4 % and 41.7 % of children. The route of administration was gastrostomy in 46.6 % and 46.1 %, respectively, in each of the periods. Conclusions: the NED registry of the NADYA-SENPE group continues to operate uninterruptedly since its inception. The number of registered patients and the number of participating hospitals remained stable in the last biennium analyzed. |
