| Autor: |
Darabos K; Children's Hospital of Philadelphia, Philadelphia, PA, USA., Berger AJ; Children's Hospital of Philadelphia, Philadelphia, PA, USA., Barakat LP; Children's Hospital of Philadelphia, Philadelphia, PA, USA.; University of Pennsylvania, Philadelphia, PA, USA., Schwartz LA; Children's Hospital of Philadelphia, Philadelphia, PA, USA.; University of Pennsylvania, Philadelphia, PA, USA. |
| Jazyk: |
angličtina |
| Zdroj: |
Qualitative health research [Qual Health Res] 2021 Nov; Vol. 31 (13), pp. 2355-2363. Date of Electronic Publication: 2021 Aug 12. |
| DOI: |
10.1177/10497323211037654 |
| Abstrakt: |
Decision-making among adolescents and young adults with cancer (AYA) is often complex, ongoing, and multifaceted, involving caregiver and oncology provider perspectives. Engagement in decision-making against the backdrop of normative developmental processes of acquiring autonomy and gaining independence contributes to the complexity of decision-making. Semi-structured qualitative interviews from 11 AYA and caregiver dyads and eight oncology providers examined decision-making processes with specific attention to the role of shared decision-making, cognitive and emotional processes, and coping with the decision-making experience. Five decision-making patterns were identified, with collaborative decision-making and AYA-driven decisions most commonly described. Utilizing hypothesis coding, AYA and caregivers explained how cognitive (i.e., pros/cons) and emotional (i.e., shock and fear of missing out) processes influenced cancer-related decisions. Coping strategies provided clarity and respite when engaged in decision-making. Our findings illuminate important implications for how to best support decision-making among AYA and caregivers, including the role oncology providers can play during decision-making. |
| Databáze: |
MEDLINE |
| Externí odkaz: |
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