[Clinicopathological characterization of children with dysphagia, family impact and health-related quality of life of their caregivers].

Autor:	Ortiz Pérez P; Sección de Gastroenterología y Nutrición Infantil, Hospital Regional Universitario de Málaga, Málaga, España. Electronic address: portizp@gmail.com., Valero Arredondo I; Sección de Gastroenterología y Nutrición Infantil, Hospital Regional Universitario de Málaga, Málaga, España., Torcuato Rubio E; Sección de Gastroenterología y Nutrición Infantil, Hospital Regional Universitario de Málaga, Málaga, España., Rosa López A; Sección de Radiología Pediátrica, Hospital Regional Universitario de Málaga, Málaga, España., García-Herrera Taillifer P; Sección de Radiología Pediátrica, Hospital Regional Universitario de Málaga, Málaga, España., Navas-López VM; Sección de Gastroenterología y Nutrición Infantil, Hospital Regional Universitario de Málaga, Málaga, España.
Jazyk:	Spanish; Castilian
Zdroj:	Anales de pediatria [An Pediatr (Engl Ed)] 2021 Jul 10. Date of Electronic Publication: 2021 Jul 10.
DOI:	10.1016/j.anpedi.2021.06.009
Abstrakt:	Introduction: Oropharyngeal dysphagia (DOF) without proper evaluation can be underdiagnosed in certain groups of the pediatric population. Meeting the needs of these patients can lead to an overload of their caregivers. Objectives: To describe the epidemiological and clinical characteristics of the patients evaluated after starting a monographic DOF clinic (C-DOF) and study whether there are changes at the nutritional level, as well as the burden and impact that caregivers find on quality of life related to health (HRQOL). Material and Methods: Descriptive observational study of patients evaluated in a C-DOF from its start-up. To evaluate HRQOL, an ad hoc survey adapted from the Swallowing Quality of Life Questionnaire of the adult population was designed. Results: 103 patients were evaluated, 85.4% presenting some neurological disease. A videofluoroscopic study was performed in 51 patients (49.5%), reporting combined alterations in both the oral and pharyngeal phases in 64.7% of them. There was a directly proportional correlation between the severity of the DOF and the presence of aspirations, as well as with the patient's motor impairment. Regarding the anthropometric evaluation, there was a trend toward improvement in weight z-score (+0.14 SD), height (+0.17 SD) and BMI (+0.16 SD). Out of 46.2% of the caregivers reported that the DOF problem interfered negatively in the basic activities of daily life. The increase in HRQOL, after the evaluation in the monographic DOF clinic, was statistically significant overall. Conclusions: The monographic DOF clinic provided specialized care, impacting positively at the nutritional status of patients, as well as perceived changes in HRQOL, with a probable impact on caregivers. (Copyright © 2021 Asociación Española de Pediatría. Publicado por Elsevier España, S.L.U. All rights reserved.)
Databáze:	MEDLINE
Externí odkaz:	Zobrazit plný text záznamu