Challenges and Growth: Lived Experience of Adolescents and Young Adults (AYA) with a Sibling with ASD.

Autor: Iannuzzi D; Department of Pediatrics, Mass General Hospital for Children, Boston, USA. diannuzzi@bwh.harvard.edu.; Department of Psychiatry, Brigham and Women's Hospital, 221 Longwood Avenue, Boston, MA, 02115, USA. diannuzzi@bwh.harvard.edu., Fell L; Department of Pediatrics, Mass General Hospital for Children, Boston, USA., Luberto C; Benson-Henry Institute for Mind Body Medicine, Mass General Hospital, Boston, USA.; Department of Psychiatry, Mass General Hospital, Harvard Medical School, Boston, USA., Goshe BM; Benson-Henry Institute for Mind Body Medicine, Mass General Hospital, Boston, USA.; Department of Psychiatry, Mass General Hospital, Harvard Medical School, Boston, USA., Perez G; Benson-Henry Institute for Mind Body Medicine, Mass General Hospital, Boston, USA.; Department of Psychiatry, Mass General Hospital, Harvard Medical School, Boston, USA., Park E; Benson-Henry Institute for Mind Body Medicine, Mass General Hospital, Boston, USA.; Department of Psychiatry, Mass General Hospital, Harvard Medical School, Boston, USA., Crute S; Benson-Henry Institute for Mind Body Medicine, Mass General Hospital, Boston, USA., Kuhlthau K; Department of Pediatrics, Mass General Hospital for Children, Boston, USA.; Department of Pediatrics, Harvard Medical School, Boston, USA., Traeger L; Benson-Henry Institute for Mind Body Medicine, Mass General Hospital, Boston, USA.; Department of Psychiatry, Mass General Hospital, Harvard Medical School, Boston, USA.
Jazyk: angličtina
Zdroj: Journal of autism and developmental disorders [J Autism Dev Disord] 2022 Jun; Vol. 52 (6), pp. 2430-2437. Date of Electronic Publication: 2021 Jun 13.
DOI: 10.1007/s10803-021-05135-0
Abstrakt: Adolescent and young adult (AYA) siblings of individuals with autism experience unique challenges that can promote both growth and emotional maladjustment. This study explored sibling and parent reports of siblings' lived experiences and identified learning, stressors, and concerns from those experiences. 20 neurotypical (NT) AYA siblings (ages 13-24), and 21 parents were interviewed. Themes that emerged from the data analysis included: (1) learning, empathy, and compassion (2) relationship between the degree of functional impairment and the nature of the sibling relationship; (3) reluctance to share information about siblings with peers; (4) hypervigilance associated with unpredictable behavior; (5) worries and concerns about the future. These findings contribute to the existing literature on the impact and nature of neurotypical siblings' lived experience.
(© 2021. The Author(s), under exclusive licence to Springer Science+Business Media, LLC, part of Springer Nature.)
Databáze: MEDLINE
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