Needs for an Integration of Specific Data Sources and Items - First Insights of a National Survey Within the German Center for Infection Research.

Autor: Jakob CEM; German Center for Infection Research (DZIF), Braunschweig, Germany.; Department I of Internal Medicine, University of Cologne, Cologne, Germany., Stecher M; German Center for Infection Research (DZIF), Braunschweig, Germany.; Department I of Internal Medicine, University of Cologne, Cologne, Germany., Fuhrmann S; German Center for Infection Research (DZIF), Braunschweig, Germany.; Department I of Internal Medicine, University of Cologne, Cologne, Germany., Wingen-Heimann S; Department I of Internal Medicine, University of Cologne, Cologne, Germany.; FOM, University of Applied Sciences, Cologne, Germany., Heinen S; German Center for Infection Research (DZIF), Braunschweig, Germany.; Department I of Internal Medicine, University of Cologne, Cologne, Germany., Anton G; German Center for Infection Research (DZIF), Braunschweig, Germany.; Institute of Epidemiology, Helmholtz Zentrum Muenchen, Munich, Germany., Behnke M; Inst. of Hygiene and Environmental Medicine, Charité Universitätsmedizin Berlin, Germany., Behrends U; German Center for Infection Research (DZIF), Braunschweig, Germany.; Children's Hospital, Technical University Munich, Munich, Germany., Boeker M; Inst. of Med. Biometry & Statistics, University of Freiburg, Freiburg, Germany., Castell S; German Center for Infection Research (DZIF), Braunschweig, Germany.; Helmholtz Zentrum for Infection Research, Braunschweig, Germany., Demski H; Institute of Epidemiology, Helmholtz Zentrum Muenchen, Munich, Germany., Diefenbach M; German Center for Infection Research (DZIF), Braunschweig, Germany.; Dev. of Infectious Diseases and Tropical Medicine, University Hospital LMU, Munich, Germany., Falgenhauer JC; German Center for Infection Research (DZIF), Braunschweig, Germany.; Institute of Medical Microbiology, Justus-Liebig-University, Gießen, Germany., Fritzenwanker M; German Center for Infection Research (DZIF), Braunschweig, Germany.; Institute of Medical Microbiology, Justus-Liebig-University, Gießen, Germany., Gastmeier P; German Center for Infection Research (DZIF), Braunschweig, Germany.; Inst. of Hygiene and Environmental Medicine, Charité Universitätsmedizin Berlin, Germany., Gerhard M; German Center for Infection Research (DZIF), Braunschweig, Germany.; School of Medicine, Technical University of Munich, Munich, Germany., Glöckner S; German Center for Infection Research (DZIF), Braunschweig, Germany.; Helmholtz Zentrum for Infection Research, Braunschweig, Germany., Golubovic M; Department of Internal Medicine, Goethe University Frankfurt, Frankfurt am Main, Germany., Gunsenheimer Bartmeyer B; Robert-Koch Institute, Berlin, Germany., Ingenerf J; Institute of Medical Informatics, University of Luebeck, Luebeck, Germany., Kaiser R; Department I of Internal Medicine, University of Cologne, Cologne, Germany., Körner ML; Helmholtz Zentrum for Infection Research, Braunschweig, Germany., Loag W; German Center for Infection Research (DZIF), Braunschweig, Germany., Mchardy A; German Center for Infection Research (DZIF), Braunschweig, Germany.; Helmholtz Zentrum for Infection Research, Braunschweig, Germany., Molitor E; Inst. for Microbiology, Immunology and Parasitology, University Bonn, Bonn, Germany., Nübel U; German Center for Infection Research (DZIF), Braunschweig, Germany.; Helmholtz Zentrum for Infection Research, Braunschweig, Germany., Pritsch M; Dev. of Infectious Diseases and Tropical Medicine, University Hospital LMU, Munich, Germany., Ramharter M; German Center for Infection Research (DZIF), Braunschweig, Germany.; Department of Tropical Medicine, University Medical Center Hamburg-Eppendorf, Germany., Rieg SR; Department of Medicine II, University of Freiburg, Freiburg, Germany., Rupp J; German Center for Infection Research (DZIF), Braunschweig, Germany.; Department of Infectious Diseases and Microbiology, University of Luebeck, Luebeck, Germany., Schindler D; German Center for Infection Research (DZIF), Braunschweig, Germany.; School of Medicine, Technical University of Munich, Munich, Germany., Schwudke D; Research Center Borstel, Germany., Spinner C; German Center for Infection Research (DZIF), Braunschweig, Germany.; School of Medicine, Technical University of Munich, Munich, Germany., Stottmeier B; German Center for Infection Research (DZIF), Braunschweig, Germany., Vehreschild M; German Center for Infection Research (DZIF), Braunschweig, Germany.; Department of Internal Medicine, Goethe University Frankfurt, Frankfurt am Main, Germany., Willmann M; German Center for Infection Research (DZIF), Braunschweig, Germany.; Institute of Medical Microbiology and Hygiene, University of Tuebingen, Tuebingen, Germany., Vehreschild JJ; German Center for Infection Research (DZIF), Braunschweig, Germany.; Department I of Internal Medicine, University of Cologne, Cologne, Germany.; Department of Internal Medicine, Goethe University Frankfurt, Frankfurt am Main, Germany.
Jazyk: angličtina
Zdroj: Studies in health technology and informatics [Stud Health Technol Inform] 2021 May 24; Vol. 278, pp. 237-244.
DOI: 10.3233/SHTI210075
Abstrakt: State-subsidized programs develop medical data integration centers in Germany. To get infection disease (ID) researchers involved in the process of data sharing, common interests and minimum data requirements were prioritized. In 06/2019 we have initiated the German Infectious Disease Data Exchange (iDEx) project. We have developed and performed an online survey to determine prioritization of requests for data integration and exchange in ID research. The survey was designed with three sub-surveys, including a ranking of 15 data categories and 184 specific data items and a query of available 51 data collecting systems. A total of 84 researchers from 17 fields of ID research participated in the survey (predominant research fields: gastrointestinal infections n=11, healthcare-associated and antibiotic-resistant infections n=10, hepatitis n=10). 48% (40/84) of participants had experience as medical doctor. The three top ranked data categories were microbiology and parasitology, experimental data, and medication (53%, 52%, and 47% of maximal points, respectively). The most relevant data items for these categories were bloodstream infections, availability of biomaterial, and medication (88%, 87%, and 94% of maximal points, respectively). The ranking of requests of data integration and exchange is diverse and depends on the chosen measure. However, there is need to promote discipline-related digitalization and data exchange.
Databáze: MEDLINE