Seeking tirelessly for better health and life conditions for the child with myelomeningocele.

Autor:	Bonelli MA; Universidade Federal de São Carlos, São Carlos, SP, Brazil.; Centro Universitário Central Paulista, São Carlos, SP, Brazil., Borges AA; Universidade Federal de São Carlos, São Carlos, SP, Brazil.; Universidade do Estado de Minas Gerais, Departamento de Enfermagem, Passos, MG, Brazil., Souza ROD; Universidade Federal de São Carlos, São Carlos, SP, Brazil.; Universidade de Araraquara, Araraquara, SP, Brazil., Castro GVZB; Universidade Federal de São Carlos, São Carlos, SP, Brazil.; Hospital Israelita Albert Einstein, Vila Santa Catarina, São Paulo, SP, Brazil., Oliveira GBS; Universidade Federal de São Carlos, São Carlos, SP, Brazil., Dupas G; Universidade Federal de São Carlos, São Carlos, SP, Brazil.
Jazyk:	English; Portuguese; Spanish; Castilian
Zdroj:	Revista latino-americana de enfermagem [Rev Lat Am Enfermagem] 2021 May 21; Vol. 29, pp. e3428. Date of Electronic Publication: 2021 May 21 (Print Publication: 2021).
DOI:	10.1590/1518-8345.3957.3428
Abstrakt:	Objective: to understand the experience of families in the care of children with myelomeningocele. Method: a qualitative research study, which adopted Symbolic Interactionism and Grounded Theory as its theoretical and methodological framework, and the semi-structured interview as a data collection instrument. Twenty-eight participants from thirteen families living in a municipality in the inland of São Paulo took part in the study. Results: the family tirelessly seeks better health and life conditions for the child with myelomeningocele; aiming at the child's autonomy, it is mobilized to the necessary treatments, to learn the care, to adapt the routine, as well as to supply for all the child's needs so that it reaches potential development, looking for a less dependent future with inclusion and social ascension. Conclusion: family nursing shows potential support in the face of myelomeningocele, due to its ability to apprehend the family system, evaluate it and enable intervention proposals in the care process. In this study, rehabilitation nursing was also emphasized, since it goes together with the child and the family who experience myelomeningocele.
Databáze:	MEDLINE
Externí odkaz:	Zobrazit plný text záznamu