Let's Talk About Lupus. Overview of an Innovative, High-Reach, Online Program to Fill the Education Gaps of Latin Americans Living With Lupus.

Autor:	Drenkard C; From the Department of Medicine, Emory University School of Medicine, Atlanta, GA, USA., Fuentes-Silva Y; Department of Medicine, Universidad de Oriente, Ciudad Bolivar, Venezuela., Parente Costa Seguro L; Rheumatology Division, Hospital das Clinicas HCFMUSP, Faculdade de Medicina, Universidade de São Paulo., Torres Dos Reis-Neto E; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Ibañez S; Sanatorio Guemes, Buenos Aires, Argentina., Elera-Fitzcarrald C; Facultad de Medicina, Universidad Científica del Sur., Reategui-Sokolova C; Universidad San Ignacio de Loyola, Lima, Perú., Linhares FA; Instituto Nacional de Reumatología del Uruguay., Bermúdez W; Hospital Clínico Quirúrgico, La Habanna, Cuba., Ferreyra-Garrot L; Hospital Italiano de Buenos Aires, Bs As, Argentina., Acosta C; Hospital Universitario 'Ruiz y Paez,' Ciudad Bolivar, Venezuela., Caballero-Uribe CV; Universidad del Norte, Barranquilla, Colombia., Sato EI; Escola Paulista de Medicina, Universidade Federal de São Paulo, São Paulo, Brazil., Bonfa E; Rheumatology Division, Hospital das Clinicas HCFMUSP, Faculdade de Medicina, Universidade de São Paulo., Pons-Estel BA; Grupo Oroño. Centro Regional de Enfermedades Autoinmunes y Reumáticas (GO-CREAR), Rosario, Argentina.
Jazyk:	angličtina
Zdroj:	Journal of clinical rheumatology : practical reports on rheumatic & musculoskeletal diseases [J Clin Rheumatol] 2022 Mar 01; Vol. 28 (2), pp. e368-e374.
DOI:	10.1097/RHU.0000000000001728
Abstrakt:	Background/objective: The Latin American population living with lupus lacks reliable and culturally competent health education resources. We describe a Spanish and Portuguese online program to educate Latin American people about lupus. Methods: An extensive network of Latin American stakeholders participated in the program design, implementation, dissemination, and evaluation. Patients and rheumatologists selected core topics. Rheumatologists prepared the content using evidence-based data. Adaptations were conducted to meet the audience's health literacy and cultural values. Social media was used to post audiovisual resources and facilitate users' interactions with peers and educators, and a Web site was created to offer in-depth knowledge. Results: The most massive outreach was through Facebook, with more than 20 million people reached and 80,000 followers at 3 months, between the Spanish and Portuguese pages. Nearly 90% of followers were from Latin America. A high engagement and positive responses to a satisfaction survey indicate that Facebook users valued these resources. The Spanish and Portuguese Web sites accumulated more than 62,000 page views, and 71.7% of viewers were from Latin American. Conclusions: The engagement of patients and stakeholders is critical to provide and disseminate reliable lupus education. Social media can be used to educate and facilitate interactions between people affected by lupus and qualified health care professionals. Social media-based health education has extensive and scalable outreach but is more taxing for the professional team than the Web site. However, the Web site is less likely to be used as a primary education source by Latin American people because they value social interactions when seeking lupus information. Competing Interests: The authors declare no conflict of interest. (Copyright © 2021 The Author(s). Published by Wolters Kluwer Health, Inc.)
Databáze:	MEDLINE
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