Client perspectives on living with dysphagia in the community.
| Autor: | Howells SR; Menzies Health Institute Queensland, Griffith University, Brisbane, Australia.; School of Allied Health Sciences, Griffith University, Brisbane, Australia., Cornwell PL; Menzies Health Institute Queensland, Griffith University, Brisbane, Australia.; School of Allied Health Sciences, Griffith University, Brisbane, Australia., Ward EC; Centre for Functioning and Health Research, Metro South Hospital and Health Service, Brisbane, Australia.; School of Health and Rehabilitation Sciences, The University of Queesland, Brisbane, Australia., Kuipers P; Menzies Health Institute Queensland, Griffith University, Brisbane, Australia.; Centre for Functioning and Health Research, Metro South Hospital and Health Service, Brisbane, Australia. |
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| Jazyk: | angličtina |
| Zdroj: | International journal of speech-language pathology [Int J Speech Lang Pathol] 2021 Apr; Vol. 23 (2), pp. 201-212. Date of Electronic Publication: 2020 Jun 11. |
| DOI: | 10.1080/17549507.2020.1765020 |
| Abstrakt: | Purpose: Literature to date describing the lived experience of dysphagia has predominantly focussed on the clinical populations of stroke and head and neck cancer. The current study aimed to understand the experience of people with dysphagia of varying aetiologies living at home in the community. Method: Using a qualitative descriptive approach grounded in phenomenology, individuals with dysphagia were interviewed ( n = 15) about their experiences living with and managing dysphagia at home. Result: Thematic analysis revealed an overarching theme of "Journey of discovery - learning to live with dysphagia," which described the process of managing dysphagia at home. This theme was characterised by three subthemes: (1) The story of dysphagia; (2) Engaging with support networks; and (3) Limited community awareness of dysphagia. Conclusion: This study highlights a range of psychosocial impacts individuals with dysphagia living at home may experience. Participants described how managing other health conditions alongside dysphagia influenced their perspectives about dysphagia. speech-language pathologists must consider individual client health priorities and provide support for not just the physical but also the psychosocial needs of clients. The reduced profile of dysphagia in our communities continues to be an ongoing barrier for clients with dysphagia and their families. |
| Databáze: | MEDLINE |
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