The SPOR-Canadian Data Platform: a national initiative to facilitate data rich multi-jurisdictional research.

Autor:	Dahl LT; Manitoba Centre for Health Policy (MCHP), Rady Faculty of Health Sciences, Winnipeg, Manitoba R3E 3P5., Katz A; University of Manitoba, Departments of Community Health Sciences and Family Medicine; Director, Manitoba Centre for Health Policy (MCHP), Rady Faculty of Health Sciences, Winnipeg, Manitoba R3E 3P5., McGrail K; Centre for Health Services and Policy Research, School of Population and Public Health, Vancouver, British Columbia V6T 1Z3., Diverty B; Vice President, Programs Division, Canadian Institute for Health Information, Ottawa, Ontario K2A 4H6., Ethier JF; Associate professor, GRIIS, Université de Sherbrooke, Sherbrooke, Quebec J1K 2R1; Scientist, Centre de Recherche sur le vieillissement, 1036 Rue Belvédère S, Sherbrooke, Quebec J1H 4C4., Gavin F; Public Advisory Council, Health Data Research Network Canada, Toronto, Ontario M4S 1M4., McDonald JT; Director, New Brunswick Institute for Research, Data and Training; Professor of Economics, University of New Brunswick, Fredericton, New Brunswick E3B 5A3., Paprica PA; Executive Advisor and Affiliate Scientist, Institute for Clinical Evaluative Sciences (ICES), 2075 Bayview Ave, Toronto, Ontario M4N 3M5., Schull M; CEO, Institute for Clinical Evaluative Sciences (ICES), 2075 Bayview Ave, Toronto, Ontario M4N 3M5; Senior Scientist, Evaluative Clinical Sciences, Trauma, Emergency & Critical Care Research Program, Sunnybrook Research Institute, 2075 Bayview Ave, Toronto, Ontario M4N 3M5; Professor, University of Toronto, Institute for Health Policy Management and Evaluation, 155 College Street, Suite 425, Toronto, Ontario M5T 3M6., Walker JD; Indigenous Lead, Institute for Clinical Evaluative Sciences (ICES), 2075 Bayview Ave, Toronto, Ontario M4N 3M5; Canada Research Chair in Indigenous Health, School of Rural and Northern Health, Laurentian University, Sudbury Ontario P3E 2C6., Wu J; Manager, Corporate Data Request Program, Canadian Institute for Health Information (CIHI), Toronto, Ontario M2P 2B7, jwu@cihi.ca.
Jazyk:	angličtina
Zdroj:	International journal of population data science [Int J Popul Data Sci] 2020 Nov 09; Vol. 5 (1), pp. 1374. Date of Electronic Publication: 2020 Nov 09.
DOI:	10.23889/ijpds.v5i1.1374
Abstrakt:	Administrative health data is recognized for its value for conducting population-based research that has contributed to numerous improvements in health. In Canada, each province and territory is responsible for administering its own publicly funded health care program, which has resulted in multiple sets of administrative health data. Challenges to using these data within each of these jurisdictions have been identified, which are further amplified when the research involves more than one jurisdiction. The benefits to conducting multi-jurisdictional studies has been recognized by the Canadian Institutes of Health Research (CIHR), which issued a call in 2017 for proposals that address the challenges. The grant led to the creation of Health Data Research Network Canada (HDRN), with a vision is to establish a distributed network that facilitates and accelerates multi-jurisdictional research in Canada. HDRN received funding for seven years that will be used to support the objectives and activities of an initiative called the Strategy for Patient-Oriented Research Canadian Data Platform (SPOR-CDP). In this paper, we describe the challenges that researchers face while using, or considering using, administrative health data to conduct multi-jurisdictional research and the various ways that the SPOR-CDP will attempt to address them. Our objective is to assist other groups facing similar challenges associated with undertaking multi-jurisdictional research. Competing Interests: Statement on conflicts of interest: The authors declare there are no conflicts of interest
Databáze:	MEDLINE
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