Subjective life experiences of family caregivers of dependent older adults.

Autor: Gutierrez DMD; Faculdade de Psicologia, Universidade Federal de Amazonas. Av. General Rodrigo Octavio Jordão Ramos 1200, Coroado I. 69067-005 Manaus AM Brasil. ddgutie@ufam.edu.br., Sousa GS; Departamento de Enfermagem Clínica e Cirúrgica, Escola Paulista de Enfermagem, Universidade Federal de São Paulo. São Paulo SP Brasil., Figueiredo AEB; Departamento de Estudos sobre Violência e Saúde Jorge Careli, Escola Nacional de Saúde Pública, Fiocruz. Rio de Janeiro RJ Brasil., Ribeiro MNS; Escola Superior de Ciências da Saúde, Universidade do Estado do Amazonas. Manaus AM Brasil., Diniz CX; Escola Superior de Ciências da Saúde, Universidade do Estado do Amazonas. Manaus AM Brasil., Nobre GASS; Faculdade de Psicologia, Universidade Federal de Amazonas. Av. General Rodrigo Octavio Jordão Ramos 1200, Coroado I. 69067-005 Manaus AM Brasil. ddgutie@ufam.edu.br.
Jazyk: Portuguese; English
Zdroj: Ciencia & saude coletiva [Cien Saude Colet] 2021 Jan; Vol. 26 (1), pp. 47-56. Date of Electronic Publication: 2020 Aug 13.
DOI: 10.1590/1413-81232020261.30402020
Abstrakt: This study aimed to understand the subjective meanings attributed to home care by family caregivers of dependent older adults through a multicenter qualitative investigation that gathered 84 in-depth interviews with family caregivers from eight Brazilian locations. The hermeneutic-dialectic, theoretical, methodological framework was employed. The following categories emerged from the analysis: 1. Movements inhibiting emotions and feelings; 2. Presence of processes of symbiosis and emotional dependence in the older adult-relative relationship; 3. Contentment in caring for the dependent older adult; and 4. Giving up current and future life projects. The results reveal life experiences marked by symbiotic processes, emotional dependence, and psychic stress. Dependence causes suffering and feelings of despair, powerlessness, impatience, but also solidarity and empathy. Withdrawal from the job market, social depreciation of family caregiver's activity, social isolation, neglected self-care, and family conflicts impact caregivers' subjectivity. The elaboration of public policies must consider the social-affective life experiences of family caregivers of dependent older adults in order to include the care of those providing care.
Databáze: MEDLINE