An exploration of perceived social isolation among persons with spinal cord injury in Ontario, Canada: a qualitative study.

Autor:	Cimino SR; Leslie Dan Faculty of Pharmacy, University of Toronto, Toronto, Canada.; Rehabilitation Sciences Institute, Faculty of Medicine, University of Toronto, Toronto, Canada., Hitzig SL; Rehabilitation Sciences Institute, Faculty of Medicine, University of Toronto, Toronto, Canada.; St. John's Rehab Research Program, Sunnybrook Research Institute, Sunnybrook Health Sciences Centre, Toronto, Canada.; Department of Occupational Science & Occupational Therapy, Faculty of Medicine,, University of Toronto, Toronto, Canada., Craven BC; Rehabilitation Sciences Institute, Faculty of Medicine, University of Toronto, Toronto, Canada.; Neural Engineering & Therapeutics Team, Toronto Rehabilitation Institute, University Health Network, Toronto, Canada.; Division of Physiatry, Department of Medicine, University of Toronto, Toronto, Canada.; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada., Bassett-Gunter RL; School of Kinesiology & Health Science, Faculty of Health, York University, Toronto, Canada., Li J; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada., Guilcher SJT; Leslie Dan Faculty of Pharmacy, University of Toronto, Toronto, Canada.; Rehabilitation Sciences Institute, Faculty of Medicine, University of Toronto, Toronto, Canada.; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Canada.; MAP Centre for Urban Health Solutions, St. Michael's Hospital, Toronto, Canada.
Jazyk:	angličtina
Zdroj:	Disability and rehabilitation [Disabil Rehabil] 2022 Jul; Vol. 44 (14), pp. 3400-3409. Date of Electronic Publication: 2020 Dec 27.
DOI:	10.1080/09638288.2020.1861485
Abstrakt:	Purpose: To advance the understanding of perceived social isolation among persons with spinal cord injury (SCI), the objectives of the present study were to explore: (1) experiences of perceived social isolation and (2) factors that contribute to perceived social isolation. Methods: Interpretive description qualitative methodology was used to conduct semi-structured interviews with 30 individuals with SCI from across Ontario (Canada) from November 2016 to August 2017. Data were analyzed using thematic analysis. Results: Participants identified disruption to social networks that seemed to impact perceived social isolation. Five major themes were identified: (1) impact on structure and frequency of social network; (2) importance of feeling heard; (3) importance of employment, hobbies, and sports; (4) need to improve physical accessibility and built environment; and (5) individual characteristics. Changes in quality of social networks, rather than size, contributed to greater feelings of perceived social isolation. The built environment, maintenance of employment, hobbies, and sports, social media, and technology use, as well as individual traits, were also found to impact perceived social isolation. Conclusion: Future research should focus on the development of programs to help maintain or improve social network quality for persons with SCI to minimize the impact of perceived social isolation.IMPLICATIONS FOR REHABILITATIONPerceived social isolation, resulting from physical and environmental barriers, is a challenge that is faced by many individuals who are living in the community with a spinal cord injury (SCI).Rehabilitation and community programs should utilize an individualized approach to find solutions to challenges faced by this population to prevent the effects of perceived social isolation.Education on how to adapt to changes in social network, together with the provision of access to peer-to-peer support groups, and SCI specific return to work or leisure programs, is recommended as an essential component of rehabilitation.
Databáze:	MEDLINE
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