Perceptions of care after end-of-treatment among younger women with different gynecologic cancer diagnoses - a qualitative analysis of written responses submitted via a survey.

Autor: Mattsson E; Department of Health Care Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden., Ljungman L; Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden., Einhorn K; Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden., Sundström Poromaa I; Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden., Stålberg K; Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden., Wikman A; Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden. anna.wikman@kbh.uu.se.
Jazyk: angličtina
Zdroj: BMC women's health [BMC Womens Health] 2020 Dec 22; Vol. 20 (1), pp. 276. Date of Electronic Publication: 2020 Dec 22.
DOI: 10.1186/s12905-020-01133-z
Abstrakt: Background: Less attention has been given to younger adults' psycho-oncology care needs than to children and older adults with cancer. The aim was to explore how care following end-of-treatment was perceived by women treated for different gynecologic cancer diagnoses during younger adulthood.
Methods: A sample of 207 women diagnosed with gynecologic cancer 2008 to 2016, aged 19-39 at time of diagnosis answered one open-ended question regarding important aspects of care after end-of-treatment. The written responses were analyzed with manifest content analysis and presented in relation to the women's diagnoses, i.e., cervical (n = 130), ovarian (n = 57), and other gynecologic cancer diagnoses (n = 20).
Results: The analysis resulted in three categories: Unmet long-term supportive care needs, Satisfying long-term supportive care, and Health care organizational difficulties. Over half of the women (66.7%) described unmet care needs. The corresponding figures were 80.7, 63.1 and 50% for women diagnosed with ovarian, cervical and other gynecologic cancer diagnoses, respectively. Satisfying supportive care were described by approximately one quarter of the women (26.1%). Among women diagnosed with ovarian cancer 14% described satisfying supportive care. The corresponding figures were 26.9 and 30% for women diagnosed with cervical cancer and other gynecological diagnoses, respectively. Approximately one quarter of the women, irrespectively of diagnosis, described aspects related to health care organizational difficulties (28%).
Conclusions: The results highlight the importance of good quality care linked to the diagnosis and based on an understanding of the woman's need, desire and expectation of support after end-of-treatment.
Databáze: MEDLINE
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