Patients' real-world experience with inflammatory bowel disease: A cross-sectional survey in tertiary care centres from the GETAID group.

Autor: Nachury M; Department of Gastroenterology, CHU Lille, Service des Maladies de l'appareil digestif, F-59000 Lille, France., Bouhnik Y; Department of Gastroenterology, IBD and Nutrition Support, Beaujon Hospital, University Paris 7 Denis Diderot, Clichy, France., Serrero M; Hôpital Nord, Centre d'investigation clinique Marseille Nord, Université Méditerranée, Marseille, France., Filippi J; Department of Gastroenterology and Clinical Nutrition, CHU of Nice, University Côte d'Azur, Nice, France., Roblin X; Department of Gastroenterology, Saint-Etienne University Hospital, Saint-Etienne, France., Kirchgesner J; Department of Gastroenterology, AP-HP, Hôpital Saint-Antoine, F-75012, ERL 1057 INSERM/UMRS 7203, UPMC Université Paris 6, Paris, France., Bouguen G; Department of Gastroenterology, CHU Rennes and University of Rennes, INCERM, CIC1414, NUMECAN institute, F-35000 Rennes, France., Franchimont D; Department of Gastroenterology, Hôpital Erasme, Laboratoire de Gastroenterologie experimentale, ULB, Brussels, Belgium., Savoye G; Department of Gastroenterology, Rouen University Hospital, Rouen, France., Buisson A; Department of Hepato-Gastroenterology, University Hospital Estaing of Clermont-Ferrand, Université d'Auvergne, Clermont-Ferrand, France., Louis E; Department of Gastroenterology, Liège University Hospital, CHU Liège, Belgium., Nancey S; Department of Gastroenterology, Lyon-Sud hospital, Hospices Civils de Lyon and INSERM U1111, University Claude Bernard Lyon 1, Lyon, France., Abitbol V; Department of Gastroenterology, Cochin University Hospital, Paris, France., Reimund JM; Service d'Hépato-Gastroentérologie et d'Assistance Nutritive, Hôpitaux Universitaires de Strasbourg (Hôpital de Hautepierre) et INSERM U1113 IRFAC (Interface de Recherche Fondamentale et Appliquée en Cancérologie), Université de Strasbourg, Strasbourg, France., DeWit O; Cliniques Universitaires Saint-Luc, UCL, Brussels, Belgium., Vuitton L; Department of Gastroenterology, Besancon University Hospital, Besancon, France., Matthieu N; Department of Hepato-Gastroenterology and Digestive Oncology, Grenoble Alpes University Hospital, Grenoble, France., Peyrin-Biroulet L; Department of Gastroenterology, Nancy Universisty Hospital, Inserm U1256 NGERE, Lorraine University, Vandoeuvre-les-Nancy, France., Gilletta C; Department of Gastroenterology, Toulouse University Hospital, Toulouse, France., Tadbiri S; Department of Gastroenterology, Henri Mondor Hospital, APHP, EC2M3-EA7375, Paris Est-Créteil Val de Marne University, Creteil, France., Allez M; Department of Gastroenterology, Saint-Louis University Hospital, Paris, France., Viennot S; Department of Gastroenterology, Caen University Hospital, Caen, France., Bourreille A; Department of Gastroenterology, Nantes University Hospital, Nantes, France., Laharie D; Department of HepatoGastroenterology and Digestive Oncology, CHU Bordeaux, INSERM CIC 1401, Centre Medico-chirurgical Magellan, Haut-Leveque Hospital, Université de Bordeaux; Bordeaux, France., Amiot A; Department of Gastroenterology, Henri Mondor Hospital, APHP, EC2M3-EA7375, Paris Est-Créteil Val de Marne University, Creteil, France. Electronic address: aurelien.amiot@hmn.aphp.fr.
Jazyk: angličtina
Zdroj: Digestive and liver disease : official journal of the Italian Society of Gastroenterology and the Italian Association for the Study of the Liver [Dig Liver Dis] 2021 Apr; Vol. 53 (4), pp. 434-441. Date of Electronic Publication: 2020 Nov 10.
DOI: 10.1016/j.dld.2020.10.020
Abstrakt: Background: Patients' experience with healthcare professionals could influence their clinical outcomes.
Aims: To assess inflammatory bowel disease (IBD) patients' experience with their disease, their treatment and their relationship with their physician.
Methods: A one-week cross-sectional study was conducted in 42 IBD centres. 2011 consecutive outpatients with IBD completed an anonymous self-report questionnaire assessing their experience with and knowledge of IBD.
Results: A quantitative assessment of the doctor-patient relationship revealed that patients' knowledge of IBD and IBD treatment ranged from 7.4 to 8.3 out of 10. In addition to IBD physicians, other sources of information about IBD and current treatment mainly included the internet (80% and 63%, respectively) and general practitioners (61% and 54%). Knowledge about education programmes (28%) was poor, resulting in a lack of willingness to further use these resources (25%). Concerns about IBD treatment were raised in 76% of patients, mostly related to the fear of adverse events (47%) and a lack of efficacy (33%). The need of alternative healthcare professionals was reported by 89% of the sample.
Conclusion: In a large cohort of patients, we highlighted gaps in the management of patients with IBD regarding the need for higher-quality information and the implementation of alternative healthcare professionals.
(Copyright © 2020 Editrice Gastroenterologica Italiana S.r.l. Published by Elsevier Ltd. All rights reserved.)
Databáze: MEDLINE
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