Hearing care and management priority among parents of children with Down syndrome: a grounded theory.

Autor:	Whicker JJ; Department of Rehabilitation, Primary Children's Hospital, Salt Lake City, UT, USA., Muñoz K; Department of Communicative Disorders and Deaf Education, Utah State University, Logan, UT, USA.; National Center for Hearing Assessment and Management, Utah State University, Logan, UT, USA., Pearson NJ; Department of Communicative Disorders and Deaf Education, Utah State University, Logan, UT, USA., Landon TJ; Department of Special Education and Rehabilitation, Utah State University, Logan, UT, USA., Nelson LH; Department of Communicative Disorders and Deaf Education, Utah State University, Logan, UT, USA., White KR; National Center for Hearing Assessment and Management, Utah State University, Logan, UT, USA.; Department of Psychology, Utah State University, Logan, UT, USA., Twohig MP; Department of Psychology, Utah State University, Logan, UT, USA.
Jazyk:	angličtina
Zdroj:	International journal of audiology [Int J Audiol] 2021 Aug; Vol. 60 (8), pp. 629-640. Date of Electronic Publication: 2020 Oct 21.
DOI:	10.1080/14992027.2020.1836407
Abstrakt:	Objective: This study qualitatively explored the factors that influence how parents of children who are Deaf or hard-of-hearing with Down syndrome prioritise hearing care and management and developed an associated theory to explain that priority. Design: Grounded theory was used for the purposes of this qualitative study. Data were collected using in-depth interviews which were analysed using a three-tiered qualitative coding process. Study Sample: Eighteen mothers of children who are Deaf or hard-of-hearing with Down syndrome participated in this study. Results: The higher the extent of engaged professional support, perception of benefit for child, parent activation, and family engagement, the higher the priority for hearing care and management will likely be among parents of children who are Deaf or hard-of-hearing with Down syndrome. Conclusions: Understanding how parents of children who are Deaf or hard-of-hearing with Down syndrome decide to prioritise hearing care and management has implications for how hearing health providers and others provide care to parents to enhance priority for hearing-related needs.
Databáze:	MEDLINE
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