Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities.

Autor: Maes B; Faculty of Psychology and Educational Sciences, Research Unit Parenting and Special Education, Catholic University of Leuven, Leuven, Belgium., Nijs S; Faculty of Psychology and Educational Sciences, Research Unit Parenting and Special Education, Catholic University of Leuven, Leuven, Belgium., Vandesande S; Faculty of Psychology and Educational Sciences, Research Unit Parenting and Special Education, Catholic University of Leuven, Leuven, Belgium., Van Keer I; Faculty of Psychology and Educational Sciences, Research Unit Parenting and Special Education, Catholic University of Leuven, Leuven, Belgium., Arthur-Kelly M; School of education, University of Newcastle, Callaghan, NSW, Australia., Dind J; Département de Pédagogie spécialisée, Université de Fribourg, Fribourg, Switzerland., Goldbart J; Faculty of Health, Psychology & Social Care, Manchester Metropolitan University, Manchester, UK., Petitpierre G; Département de Pédagogie spécialisée, Université de Fribourg, Fribourg, Switzerland., Van der Putten A; Faculty of Behavioural and Social Sciences, University of Groningen, Groningen, The Netherlands.
Jazyk: angličtina
Zdroj: Journal of applied research in intellectual disabilities : JARID [J Appl Res Intellect Disabil] 2021 Jan; Vol. 34 (1), pp. 250-262. Date of Electronic Publication: 2020 Oct 18.
DOI: 10.1111/jar.12803
Abstrakt: Background: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges.
Methods: The challenges are centred on six topics. These reflect the main components of a study's design: (a) participant demarcation, (b) participant recruitment, (c) data collection and instruments, (d) data analysis, (e) ethics/including the "voice" of persons with PIMD and (f) theoretical models.
Results: Next, to describing the specific challenges, possible solutions and pathways to address them are discussed. These are illustrated by recent studies by the authors and other researchers in the field.
Conclusions: The current contribution wants to stimulate further discussion and exchange of ideas, and the development of creative research techniques.
(© 2020 John Wiley & Sons Ltd.)
Databáze: MEDLINE
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